tag:blogger.com,1999:blog-3107658204718797774.post5820464166095007324..comments2024-03-28T01:02:00.826-04:00Comments on Jessica's Journey: November is RSD/CRPS Awareness Month...Jessica's Journeyhttp://www.blogger.com/profile/14962360043315954408noreply@blogger.comBlogger23125tag:blogger.com,1999:blog-3107658204718797774.post-28683551661419059132012-07-30T10:52:26.495-04:002012-07-30T10:52:26.495-04:00Imagine living in a body that causes you pain 24/7...Imagine living in a body that causes you pain 24/7 - that's CRPS. There's no getting away from it at the present time but sufferers should not let hopelessness into their lives. A growing community of people and doctors are doing their best to help and come up with a cure. Don't lose hope Jessica!spinal cord stimulation for chronic painhttp://crpsnews.org/noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-60356560332037144922012-05-10T13:48:56.630-04:002012-05-10T13:48:56.630-04:00I'm sitting here crying because I feel my life...I'm sitting here crying because I feel my life slipping away from me, bit by bit. So many of the things that I used to do are as far away now as Mars, in so much as they are out of reach for me. I feel defined by my pain, yet the people around me will still ask "so, are you over your 'thing' yet?" I'm the Pastor's wife...and the only keyboard player we have, as well as the worship director. The people at church see me once a week, dressed up and hustling to do my part. They don't realize that Sunday is the only day I actually get dressed or do my face and hair. They don't realize that the smile they see takes so much effort, that my feet are burning and my back feels like it"s breaking...or that I can't wait to get back to my recliner and just let go as the pain overwhelms me again. I know that I have much to be thankful for...my husband and son. My parents and church family, but right now, in this minute, I just feel so lost in this awful 'thing'...and I don't know how to explain it, over and over and still face those questioning faces. I'm so tired. Please, whoever reads this, pray for me. I know that the Lord Jesus understands, I don't know why He's allowing this but I know there's a reason...but sometimes I just can't reason it out that far and I just feel lost and alone. If you understand all of this, I'm so sorry, because it probably means that you have it too. <br />I don't mean to whine, I just needed to say it to someone who understands. Thank you for sharing your journey with us...it helps.<br />Betty M. , Franklin, WIbmoorefreehttps://www.blogger.com/profile/02091530943908071865noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-14578331680812504882011-03-09T22:45:27.139-05:002011-03-09T22:45:27.139-05:00I just want to wish Jessica all the best with her ...I just want to wish Jessica all the best with her treatment and recovery. <br /><br />I also have severe full body CRPS/RSD (12 years for me) but the Ketamine Coma isn't an option - I've had three inpatient treatments using the 'Awake' treatment and all have made me very ill. <br /><br />I truly hope you are now in less pain and that 2011 brings some better times for you.Laurahttp://www.laurascrpsjourney.weebly.comnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-32965760343778511492011-01-11T00:39:16.088-05:002011-01-11T00:39:16.088-05:00Hi Jessica! I have full-body RSD and saw Dr. Kirkp...Hi Jessica! I have full-body RSD and saw Dr. Kirkpatrick for his 3-Day outpatient Ketamine Infusion in April, 2010. The Ketamine Coma was recommended for my case as well, but I'm looking into another outpatient infusion while we raise money for the coma. I've been suffering since 2006 and can't even imagine going through what you've been through for so many years and at such a young age!! My prayers are with you!! I would love to hear about your progress after having had the coma. My webpage is www.helpbrittbeatrsd.org -If you wouldn't mind, would you contact me through my site and let me know how you're doing? I'd really appreciate it! I hope 2011 will bring you peace and freedom from the excruciating pain of RSD!Brittanynoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-86659368141946931162011-01-11T00:39:15.837-05:002011-01-11T00:39:15.837-05:00Hi Jessica! I have full-body RSD and saw Dr. Kirkp...Hi Jessica! I have full-body RSD and saw Dr. Kirkpatrick for his 3-Day outpatient Ketamine Infusion in April, 2010. The Ketamine Coma was recommended for my case as well, but I'm looking into another outpatient infusion while we raise money for the coma. I've been suffering since 2006 and can't even imagine going through what you've been through for so many years and at such a young age!! My prayers are with you!! I would love to hear about your progress after having had the coma. My webpage is www.helpbrittbeatrsd.org -If you wouldn't mind, would you contact me through my site and let me know how you're doing? I'd really appreciate it! I hope 2011 will bring you peace and freedom from the excruciating pain of RSD!Brittanynoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-44188612608747629612010-12-17T05:10:48.795-05:002010-12-17T05:10:48.795-05:00Merry Christmas! Let the new year will bring a lot...Merry Christmas! Let the new year will bring a lot of moneyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-39774053498540301832010-12-09T23:52:45.016-05:002010-12-09T23:52:45.016-05:00Dear Jessica,
It is so wonderful to hear of the p...Dear Jessica,<br /><br />It is so wonderful to hear of the progress you are making. You are such a courageous, inspiring person! Thanks for keeping all of us updated on your blog. I think of you often and I am keeping you in my prayers.<br /><br />God Bless, <br />Love, MarissaMarissa McCaynoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-26101293726498550952010-11-24T14:18:17.557-05:002010-11-24T14:18:17.557-05:00Happy Thanksgiving, Jessica & Sarah!
We give ...Happy Thanksgiving, Jessica & Sarah!<br /><br />We give thanks to God for the healing thus far and hope and pray He will get you the rest of the way!<br /><br />May you have a wonderful Thanksgiving with your Mexican family!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-3468631973675420672010-11-23T10:48:50.829-05:002010-11-23T10:48:50.829-05:00Here is an interesting article:
http://www.rsds.o...Here is an interesting article:<br /><br />http://www.rsds.org/2/library/article_archive/pop/Nama_PainPhysician_2010.pdf<br /><br />The Use of Sub-Anesthetic Intravenous<br />Ketamine and Adjuvant Dexmedetomidine<br />when Treating Acute Pain from CRPS<br /><br />Dexmedetomidine is an alpha 2<br />agonist similar to clonidine with analgesic properties that can be used in combination<br />with ketamine to provide additional analgesia in CRPS.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-44634344618794940812010-11-20T17:34:31.964-05:002010-11-20T17:34:31.964-05:00Jessica,
You are helping a lot more people than yo...Jessica,<br />You are helping a lot more people than you may think! You have great value and I know you will accomplish all your dreams.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-23394732343122179472010-11-19T16:43:08.534-05:002010-11-19T16:43:08.534-05:00GREAT video- best I've seen!! Thanks for rasin...GREAT video- best I've seen!! Thanks for rasing awareness!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-76353784771047856222010-11-19T10:28:14.987-05:002010-11-19T10:28:14.987-05:00I think I know who needs to be my computer tutour!...I think I know who needs to be my computer tutour! Always amazes me how you imbed stuff and link info. I watched the video and got Harrison to show me how to add it to my facebook page before he left for school this morning but not sure I get what I did. LOL<br />I am so thrilled to hear that you can sit in the chair for three hours now and look forward to skyping with you real soon! I want to hear all about the foods that your fabulous mother is cooking for your enjoyment and am thanking God that you can once again enjoy them.<br />I know that this has been a long hard journey for you and so while I thank God for the steps in a positive direction, I also seek His favour in providing you with the energy to keep pushing onward, the ability to feel the love that is all around the world for you and that you would find strength in each day to face the hurdles along the way!<br />God bless you today, my friendsFernhttps://www.blogger.com/profile/10447469584806915973noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-29948694905312784742010-11-18T22:30:11.702-05:002010-11-18T22:30:11.702-05:00Dearest Jessica and Gina, This is more amazing ne...Dearest Jessica and Gina, This is more amazing news!!! Jess, thinking of you eating spaghetti and meatballs makes me so happy- before long you'll be eating Grandma's delicious cookies!! And sitting up in the recliner, no sunglasses, no headphones- miracles really are happening!! Gina, your heart must be bursting with gladness!! I am just so grateful for these steps forward. We will keep on praying- and thanking GOD!!!!! Love always, Angel xoxoxoxoxoxoxoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-78477921349928958992010-11-18T18:47:40.885-05:002010-11-18T18:47:40.885-05:00Great video. Thanks for posting it!Great video. Thanks for posting it!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-83107441438805484332010-11-17T14:26:05.004-05:002010-11-17T14:26:05.004-05:00Hola,
So I think you are a Mexican who talks with ...Hola,<br />So I think you are a Mexican who talks with your hands now...eh!! What great progress. I bet your Mom's spaghetti was the best meal yet! Can't wait to share a meal with you real soon!<br /><br />Love and kisses,<br /> And Jose'Nancynoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-78614747723622750342010-11-17T09:41:56.851-05:002010-11-17T09:41:56.851-05:00Your progress is incredible and I'm constantly...Your progress is incredible and I'm constantly amazed at everything you've done and continue to do. I love you so much and think of you every day. <br /><br />XO<br />AshleyAshleyhttps://www.blogger.com/profile/05892828570708474994noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-9705255544843493852010-11-17T09:41:10.558-05:002010-11-17T09:41:10.558-05:00This comment has been removed by the author.Ashleyhttps://www.blogger.com/profile/05892828570708474994noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-54864807144836243422010-11-17T09:39:32.948-05:002010-11-17T09:39:32.948-05:00Jessica
That is a great post and I am so thankful ...Jessica<br />That is a great post and I am so thankful that you are continuing to have those really big 'small steps'. To sit in the chair for 3 hours and eat spaghetti and meatballs is quite an accomplishment.<br />Continuing to pray for God's strength as you walk this road.<br />Kathy RoosmaHarv and Kathyhttps://www.blogger.com/profile/04846175999661642547noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-26766954584382480382010-11-17T09:22:21.198-05:002010-11-17T09:22:21.198-05:00Oh Jessica,
You do our hearts good!
What a way...Oh Jessica,<br /><br />You do our hearts good! <br /><br />What a way to start our day! Thank you for giving us strength, hope and inspiration. We have not had a "bad" day since meeting you. No matter what is going on, we think of you (and your Mom) and say "Look at what they have done and what they have overcome" and then, how bad can our day really be? There is no limit to your potential and with God's help and grace, you will achieve all your dreams. All things happen for a reason, even when we do not understand them. I can see now the blessing we received when our paths crossed. Thank you and thank you Sara Gina for bringing such joy into our lives! May God continue to bless you all and answer all your prayers. <br /><br />With much love always,<br /><br />Rosemary & JohnRosemary & Johnnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-6440001326872246772010-11-16T09:21:18.378-05:002010-11-16T09:21:18.378-05:00"Impatience is...what we begin to feel when w..."Impatience is...what we begin to feel when we start to doubt the wisdom of God's timing or the goodness of God's guidance."<br /><br />Patiences is "a deepening, ripening, peaceful willingness to wait for God in the unplanned place of obedience, and to walk with God at the unplanned pace of obedience."<br /><br />Both quotes are Piper in "Future Grace."Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-64452268294760639872010-11-15T16:29:03.075-05:002010-11-15T16:29:03.075-05:00Hi Jessica!
We are all so glad that you are doing ...Hi Jessica!<br />We are all so glad that you are doing well! You "small steps" are really becoming huge advances! You are a very inspiring person and we are so glad that you have been able to do things you haven't done for years! We are very happy for you! We will be thinking of you especially this month. You are in our prayers. Hope to see you back in Florida soon!<br />The Thompson FamilyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-45314916669501046652010-11-15T10:01:37.465-05:002010-11-15T10:01:37.465-05:00Thanks for the update, Jessica! You have definite...Thanks for the update, Jessica! You have definitely come a VERY long way. We are just thrilled at the GREAT progress you are making! We thank God for the answered prayers!<br /><br />Your blog is very instrumental in getting the information out there not only for those who suffer but for their families and friends as well. It helps people to understand the slowness of the recovery progress and also that there is HOPE (and where our hope is from)!<br /><br />There are many doctors working on this (more than we know). We hope and pray that CRPS/RSD will be eradicated like polio and small pox (with God, all things are possible).<br /><br />Keep taking those small steps, Jessica. I know you will get there.<br /><br />With love & prayers,<br />The TurnersAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-2869938140941102762010-11-14T20:07:00.594-05:002010-11-14T20:07:00.594-05:00You are so brave and inspirational! Thank you for ...You are so brave and inspirational! Thank you for all you do for others to raise awareness!!!!<br /><br />You are all in my thoughts and prayers, Always! Blessings!Anonymousnoreply@blogger.com