tag:blogger.com,1999:blog-3107658204718797774.post8128370273731496810..comments2024-03-28T01:02:00.826-04:00Comments on Jessica's Journey: The RSD/Lyme Connection...Jessica's Journeyhttp://www.blogger.com/profile/14962360043315954408noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-3107658204718797774.post-62158184335948618222017-06-27T04:18:55.560-04:002017-06-27T04:18:55.560-04:00One big difference. RSD is 'crippling' pai...One big difference. RSD is 'crippling' pain. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-48581670960154764442017-02-23T18:57:01.399-05:002017-02-23T18:57:01.399-05:00I have both Lyme Disease and CRPS, and life has be...I have both Lyme Disease and CRPS, and life has been torturous. This is the first time I have found someone who has both. I am wondering, you did not say how the IVIG treatment worked? Was it effective? I have found that anything I take to kill my Lyme infections (I have many) makes my CRPS worse, and when I do what I know to treat CRPS it makes my Lyme worse. At the end of the day it doesn't matter if they are the same thing or connected (for me they obviously are), I just need to find something or my days are numbered. Anyway. You sound like someone I would like to speak to and wonder if you are open to that. I have a web site called Pain Maps (dot com) with tons of research for CRPS and a blog and other stuff, a radio series on pain, lots of stuff there. Please contact me at sensorybeing [at] gmail [dot] com if you are open to talking. Thanks!Anonymoushttps://www.blogger.com/profile/00001320628323762849noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-10898517376400089752016-09-08T10:26:43.004-04:002016-09-08T10:26:43.004-04:00Hi- my nine year old son is currently experiencing...Hi- my nine year old son is currently experiencing the same thing. Severe pain in his foot and nothing seems to be working. He's been diagnosed with CRSP as well (investigating Lyme). Please tell me something eventually worked for the pain?!?! Any insight you have would be greatly appreciated!!Anonymoushttps://www.blogger.com/profile/13767436516542426108noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-46437031160145640072016-01-19T20:41:39.925-05:002016-01-19T20:41:39.925-05:00Fascinating discussion about Lyme disease and CRPS...Fascinating discussion about Lyme disease and CRPS. I do not have Lyme that I am aware of but suffer from CRPS. This all truly is a mystery that needs unraveling and a CURE! Stay strong everyone and let's stay on a mission for research and cures.Anonymoushttps://www.blogger.com/profile/12818699471264590846noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-62997312709111104412016-01-19T20:17:19.533-05:002016-01-19T20:17:19.533-05:00Thank you for sharing! I have had CRPS fir almost...Thank you for sharing! I have had CRPS fir almost 7 years. I agree, we are the experts! No one else is more invested in our own bodies than we are! I learned about a year ago that I also have Lyme. I have tried to trace it. It looks like it may have been due to a spider bite over 10 years ago. I went to the ER, but was belittled and dismissed. Hindsight! I Advocate for hundreds of thousands of people all over the world. The number of people that have both CRPS and Lyme seem too large to be coincidental. I'm not a doctor. But all of my doctors seem to agree that it was the uh nnderlying lyme that encouraged my body to develop the CRPS after surgery that day. <br />It's something to think about. Gracie Bagosy-Younghttp://www.ggpainadvocacy.comnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-87547295049014460342015-03-11T17:05:59.265-04:002015-03-11T17:05:59.265-04:00Lyme is certainly very complex. It’s good to know ...Lyme is certainly very complex. It’s good to know that you’ve become ‘sort of an expert’ towards your condition. Being well-informed about this disease is the best armor you could use against this illness. In most cases, the lack of awareness on both ends can cause Lyme patients to be misdiagnosed or diagnosed too late. Thanks for sharing these information, and I wish you all the best!<br /><br /><a href="http://medicalattyny.livejournal.com/10055.html" rel="nofollow">Sabrina Craig @ Law Firm of Joseph M. Lichtenstein P.C.</a><br />Sabrina Craighttps://www.blogger.com/profile/06094554516202049753noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-73613971356697795062015-03-11T17:05:47.715-04:002015-03-11T17:05:47.715-04:00This comment has been removed by the author.Sabrina Craighttps://www.blogger.com/profile/06094554516202049753noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-28114467974662194922012-01-11T19:10:55.436-05:002012-01-11T19:10:55.436-05:00My 10 year old son was just diagnosed with lyme di...My 10 year old son was just diagnosed with lyme disease and Crsp in his foot and ankle. So far nothing has touched the pain and physical therapy has been so hard. I am glad you are doing better and found the information you posted very informative. Thank you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-42010019366297455072011-06-02T11:17:07.961-04:002011-06-02T11:17:07.961-04:00Isaiah 26:3
3 You will keep in perfect peace
...Isaiah 26:3<br /><br />3 You will keep in perfect peace <br /> him whose mind is steadfast, <br /> because he trusts in you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-86230992635264392912011-05-27T20:17:41.436-04:002011-05-27T20:17:41.436-04:00What a wonderful testament to your parents, docto...What a wonderful testament to your parents, doctors, medicines, etc.; all of whom are under the skillful guidance of the greatest healer of all - our Lord Jesus. <br /><br />I am thrilled and inspired by your progress.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-59826708726800477522011-05-25T08:38:42.728-04:002011-05-25T08:38:42.728-04:00http://chronicfatigue.about.com/od/overlappingcond...http://chronicfatigue.about.com/od/overlappingconditions/p/fibromyalgia2.htm<br /><br />Central sensitivity syndromes<br /><br />Muhammad B. Yunus, MD, a pioneer FM researcher, believes that there is a large group of illnesses with overlapping features that he calls "Central Sensitivity Syndromes." What they all have in common is a sensitization of the central nervous system. Under this broad CSS category, he lists disorders such as FM, CFS, migraines, irritable bowel syndrome, TMJ, multiple chemical sensitivities, restless legs syndrome, myofascial pain syndrome, and others. All of these illnesses have some symptoms that overlap one another.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-63140284096796815092011-05-24T16:50:04.319-04:002011-05-24T16:50:04.319-04:00Right on! There are too many overlaps with the im...Right on! There are too many overlaps with the immune deficiencies diseases. Just watched a program on YouTube where the doctor was explaining when pain becomes a disease and how much information is still needed. As he pointed out.. we are treating the symptoms but not the underlying problem. I have noticed that many who end up with one disease, often begin to collect them. Be a good research study... it is coming for sure!Fernhttps://www.blogger.com/profile/10447469584806915973noreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-44042293328112196752011-05-23T17:39:32.159-04:002011-05-23T17:39:32.159-04:00Dear Jessica,
Thank you. We ask that God bless y...Dear Jessica,<br /><br />Thank you. We ask that God bless you and keep you strong in mind, body and spirit. You amaze us with your attitude and thirst for knowledge. It is only through the asking of these questions that we can begin to seek answers. You have taught your doctors more than any book or lecture. Thank you for being a voice for those who cannot find the words to speak for themselves. You are clearly here for a reason; this much we know.<br /><br />Much love,<br /><br />Rosemary and JohnRosemary and Johnnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-87290511196594745552011-05-21T19:30:28.916-04:002011-05-21T19:30:28.916-04:00Excellent post! Very informative! This same viru...Excellent post! Very informative! This same virus may be responsible for fibro and CFS as well. Some doctors believe these are overlapping illnesses all affecting the nervous system.<br /><br />Oddly enough most pain syndromes affect more women then men (these also include MS and Lupus). It seems to affect women of child bearing age then the numbers drop in women AFTER menopause.<br /><br />This is far bigger than we realize. Much research is needed and is being done.<br /><br />God is greater and we trust we will help us find the way.<br /><br />With love and prayers,<br />The TurnersAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3107658204718797774.post-87866084905077611832011-05-20T17:03:01.793-04:002011-05-20T17:03:01.793-04:00Dear Jessica, So many things were going through m...Dear Jessica, So many things were going through my head as I read your post... Many thanks to our Great God for bringing you through the darkness to where you are today, where you can enlighten us with a thought-provoking medical explanation of RSD and Lyme. Only someone like you, who has gone through it the way you have, can ask the right questions that can lead to real breakthroughs in treatment and, hopefully someday, prevention. Your intelligence and articulation shine forth in your explanations, especially when you take complicated concepts and apply real-life examples to them and make them understandable for others (like me!) I am so thankful for how far you've come, and will continue to pray for you, your mom (hi Gina!) and your amazing family. Love always, Angel xoxoxoxoAnonymousnoreply@blogger.com