Monday, November 23, 2009

THE NECKLACE IS HERE!!!


Hi everyone,

TO VIEW JESSICA ON FOX TV - CLICK ON LINK:


http://www.youtube.com/watch?v=PW_vstm0bS8


JESSICA'S NECKLACE IS NOW AVAILABLE!!!


This necklace has been dedicated to Jessica's struggle with Lyme Disease and RSD by Lymelinks Jewelry. It was made to honor her commitment to Lyme Disease Awareness. All proceeds from the sale of the necklace will go to Jessica's Journey Savings Club. It is available now and just in time for Christmas & Holiday gifts! Visit www.lymelinks.etsy.com or just click on the link below. Jessica and the entire Stevens Family would like to thank Brian & Michelle Mah from Lymelinks, who created this necklace, as well as Cat Charles, Laci Corridor, and everyone else that made this necklace possible! May God bless you all!!!

CLICK ON THE LINK BELOW TO ORDER:

http://www.et...sy.com/view_listing.php?listing_id=34995115.

Update on Jessica:

Jessica would like to thank the Mah family for such a generous outpouring of love and for such a wonderful job they have done with the necklace. She would also like to thank Cat Charles for remembering her in this special way and for Laci Corridor and everyone else for all their hard work as well. This is the first time that Lymelinks is "adopting" a patient with all the proceeds going towards helping with Jessica's medical bills through the Jessica's Journey Savings Club.

As you know, we are still in Mexico undergoing treatment for RSD with ketamine. It has been a struggle and their have been setbacks, but we remain hopeful that we can see a miracle unfold for her. Jessica is a fighter. She will continue this journey with her inner strength and faith in God to see her through! But, at the same time, she is constantly strengthened by the love from all of you - and she wants you to know how thankful she is and how appreciative she is to all of you as well! Her battle is a daily one; fought against two foes: RSD and Lyme. The hope is that one day, through research, they will find a cure for both illnesses!!! Let us all pray for that!!!

Pray for Jessica today as she receives another ketamine booster for her pain, especially on the entire right side of her body. Also, pray for her "static vision" to go away, so that she can see normally again! Also, pray for the severe headaches to go away and with that the extreme noise & light sensitivity as well. Pray for increased movements in her legs, so that one day she will be able to walk again!

Remember this: With each new dawn there is delivered to your door a fresh, new package called "today". God has designed each of us in such a way that we can handle only one package at a time...and all the grace we need will be supplied by Him as we live out that day!

"Those who know Your name will put their trust in You, for You, o Lord, have not forsaken those who seek You".
Psalm 9:10

In God's love,
Sarah Gina (Jessica's Mom)

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Saturday, November 21, 2009

JESSICA'S NECKLACE!!!

TO VIEW JESSICA ON FOX TV - CLICK ON LINK:

http://www.youtube.com/watch?v=PW_vstm0bS8






This necklace has been dedicated to Jessica's struggle with Lyme Disease and RSD by Lymelinks Jewelry. It was made to honor her commitment to Lyme Disease Awareness. All proceeds from the sale of the necklace will go to Jessica's Journey Savings Club. It will be available starting at 8:00 PM on November 21st at: www.lymelinks.etsy.com. Jessica and the entire Stevens Family would like to thank Brian & Michelle Mah from Lymelinks, Cat Charles, Laci Corridor, and everyone else that made this necklace possible! May God bless you all!!!


TO ORDER - CLICK ON LINK BELOW:

http://www.et...sy.com/view_listing.php?listing_id=34995115.



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"The Great Escape"


Happy Saturday to All,

TO VIEW JESSICA ON FOX TV - CLICK ON LINK:


http://www.youtube.com/watch?v=PW_vstm0bS8

****************************************************
SPECIAL NEWS ABOUT NECKLACE:
The special necklace that was designed in honor of Jessica is due to be launched tonight! I am still waiting on the links and info so that it can be posted accurately on the blog. As soon as I have the info I will post how the necklace came about with a special note from its creators. The necklace is beautiful and I know that you will all want to have one for your very own. Keep checking back during the day for the updated information and photos!!!

Update on Jessica:

Jessica received another booster yesterday to try and alleviate the right side pain that is still plaguing her. The nerve block that she received two days ago initially worked to reduce one aspect of the pain, but it did not last very long. She describes the pain as burning, shooting, stabbing pain. We ask for continued prayers for relief from that pain as well as for her vision to return - as she is still experiencing the "static vision" that began almost two months ago. It is like watching a TV that is experiencing difficulty and is all thick "static". And the color of this static is green - lime green - of all colors!!! It has made her road here difficult to say the least, as I'm sure you can only imagine! It is an unexpected obstacle that she has had to face and deal with and it is very distressing to her! For Jessica it is horrible and it needs to go away! Thank you for your continued prayers for her eyesight to return!

Devon's Great Escape:
On a happier note, Jessica's fellow "coma buddy" Devon successfully left the hospital yesterday to return to Connecticut. I say successfully because it isn't the first time she has tried to leave the Hospital San Jose! Here is the story of Devon - aka "Escape Girl":

Just a little background info: When you first go into the ketamine coma you are in the ICU initially for the 5-6 days you are in the coma and then you remain in ICU for the following 4-5 days for monitoring before you are released from ICU to the 8th floor.
While Devon was in the ICU post the coma, the doctors thought that something may be wrong with her brain because she initially was unresponsive for the first few days upon emerging from the coma. She didn't speak, blink or move. Tests were performed and no answer could be found for why this was happening to her. It wasn't until her release from ICU and onto the 8th floor, did the answers unfold. You see, Devon is called "Escape Girl" because she is the first coma patient that tried to "escape" from the hospital and, as she later confided to Jessica - the "escape plan" was devised in those 3 days down in ICU. Devon says that if she did indeed have any type of brain injury, it was only because the ICU nurse braided her hair too tightly, as they tend to do to all female coma patients! The reason she wasn't speaking , she says, was because she was planning her "escape" during that time and she didn't want anyone to know her plan. So, on one of the very first nights on the 8th floor, while her Mom Cathy was fast asleep on the couch in her room, (exhausted after being awake for five days straight while Devon was in the coma) she decided that it was now or never, so Devon escaped!!! She carefully disconnected herself from all her IV's, tucked the catheter bag into her pajama bottoms, slipped thru the crack of the cranked hospital bed, by lifting the head and feet as high as they could go, took off her hospital gown for a more normal top that she retrieved from her suitcase on the floor, and proceeded to the service elevator; even eluding detection from the nurses by going down a different hallway!!! You see, she just wanted to go back to the hotel - where she knew her Aunt Tracy and twin sister Caroline were staying --- she wanted "out"!

She managed to make it down 8 floors, past the PB lobby, and ultimately, from sheer exhaustion and the detection of a security guard, landed of all places right in front of the chapel that is located in the hospital and she was stopped right there! She initially lied to the security guard by saying she was her twin sister Caroline who was visiting her sick mother in the hospital and did not need any help. It was the catheter bag sticking out of her pants that ultimately gave her away. (Also - its a long story - but Nancy, who was here helping me with Jessica at the time - was called down by security because they thought she was one of Devon's family members and it was Nancy who revealed to them that this indeed was Devon, a coma patient, and that wheelchair assistance was needed as soon as possible and with that Devon was whisked back to the 8th floor)

When Devon was finally returned back to her room on the 8th floor, Jessica and I could hear the commotion and activity that was going on outside of her room. It was on that day, after we found out what happened, that Devon became "Escape Girl" and a legend in her own right! Jessica wanted to become escape girl! She wanted to be able to try to "escape" as well, even though in Jessica's case, she knew her legs could never bring her there, as she has been unable to walk for the past few years! Nevertheless, she was named "Escape Girl" that night and the name stayed with her for the rest of her stay here in the hospital! I also presented her with her "ketamine coma Escape bear" - fully decorated with black & white stripes - and her "prisoner" number 845843 - to signify the two rooms she occupied while here in the hospital. (that's another story for another day) I know that her family at home will get a kick out of her bear - to say the least - and that it will always remind her of her journey as well.

So, today, we wish Devon (aka "Escape Girl") "godspeed" in her "new normal" life because, as I have said before, you cannot go thru something like this and think that your life will be the same. It will be what I term a "new normal" in that you have to realize where you have come in your journey to wellness, but, at the same time you have to respect where you have been, and what you have been through, to realize where you are at! I hope that makes sense.........Hope to see you soon Devon in the "states" and we wish you and your Mom Cathy (who, by the way, became very special to me as we shared a time here that we will never forget) all the best! Have fun reconnecting with your Dad, sisters Caroline and Nicole and your whole extended family as well, including your cats Chloe, Ollie & Annie!
We wish you well and pray for God's protection over you!

From Mexico, with love,
Sarah Gina (Jessica's Mom)

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Friday, November 20, 2009

23,000 Views of Blog!!! 3,500 Views of YouTube!!!


Hi to all,

TO VIEW JESSICA ON FOX TV - CLICK ON LINK:


http://www.youtube.com/watch?v=PW_vstm0bS8

SPECIAL NEWS: I have heard that the necklace is due to be launched this Saturday - Nov. 21st!!! As soon as I have all the info and links I will post them on the blog!!! Keep looking for the updates, as I know from the blog comments that you are all eager to see how beautiful it really is and to purchase one for your very own!!! I will post it as soon as possible so keep looking for the updates!!!

***There is going to be a special fund raising item that is going to be announced very soon. It involves a special necklace that was designed especially for Jessica and all the proceeds from the sales of this item will be donated to Jessica's Journey Savings Club! I have seen it and it is beautiful! It was made in honor of Jessica and her efforts to increase Lyme disease awareness, something that Jessica has been very passionate about since she has been battling that disease for the past four years as well! As soon as I have all the info and links, I will blog this SPECIAL NEWS and how it all came about and how and when it will become available!!!

SPECIAL THANKS TODAY!!!!!!!!!!!!!

One of my youngest daughter Michelle's best friends is Genevieve Klatt. They are in the 8th grade at Garden City Middle School. Both of her parents, Wayne & Renee Klatt, have been very kind to David & Michelle in my absence.

Wayne Klatt approached my husband and asked if it was OK for him to run a fund raiser at his office on Wall St. in New York City. David said yes and thanked him for organizing such a kind gesture on Jessica's behalf.

Words cannot express our gratitude to Wayne and the employees at CREDIT SUISSE EQUITY DEPARTMENT.
They held the fund raiser on Nov. 13th and this past Wednesday, the Klatt's gave my husband David the proceeds. They raised $19,250 for Jessica's Journey!!! Amazing - simply amazing!!! God bless the Klatt Family and all the employees at his office!!!

There aren't enough words to express our gratitude --- they just don't seem to be enough! But, I will say, that our hopes will be to one day bring Jessica back home - "healed" - to start her "new" life. It is then that the "ultimate thank-you" will be said to ALL of you --- because it is with all of your kindness, love, prayers, and GENEROSITY --- that have made this all possible for her!!!

With much love and appreciation,
The Stevens' Family

Update on Jessica:

Jessica and I have been in Monterrey for 3 months now and oh what a journey it has been! I remember when we first arrived here. Not only did we have "packed" with us all the supplies that we thought we would need, but also, more importantly, we "packed" with us the hopes and dreams of what could be.

For Jessica, she "packed" with her the hope of a life free of unbearable pain and the ultimate healing of her body from all sicknesses! The hope of one day being able to have a "normal" life again in a body that was "whole" again! We both knew, as well as her doctors, that the road ahead would be tough! That a body like hers that has been sick for so long would take time and that she had a big "fight" ahead of her. That Jessica and her journey to wellness would be fought on a day to day basis - just as she has from the beginning of her illness that began almost four years ago.

For me, as her Mom, I have had to take this day to day journey with her as well. This is not to say that her Dad and her two sisters have not endured this path with her as well, because they too have had to struggle along with her, but ultimately, when a child is ill, there really is one person that they want - and that is their Mom. For a child, they feel that Mommy will make it "all better" - as only a Mom can! Try as you might, there are times that even a Mom can't answer that call---that ultimately, we are ALL, in the hands of our Father above!

So today, I ask for continued prayers for Jessica. For her to continue this journey with the strength, conviction, and perseverance she has shown from the beginning! That God will continue to hold her in the palms of his hands and give her the peace that passeth all understanding to endure the road ahead. I also ask you to pray for the doctors here in Mexico, especially Dr. Cantu, who, day in and day out, help to guide her recovery, as only they can, with their wisdom, knowledge and expertise!

Jessica and I have seen the progress she has made since we have been here. Has it been easy? No. Are there hurdles and challenges still ahead? Yes. But, we have seen the miracles that can happen. We will not stop until we see that miracle unfold for her as well! She has been through alot and deserves that and even more! May God bless you and keep you and may his face shine upon you and give you peace!


In God's love,
Sarah Gina (Jessica's Mom)

"Trust in the Lord with all your heart; do not depend on your own understanding. Seek His will in all you do, and He will direct your paths".
Proverbs 3:5-6

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Wednesday, November 18, 2009

Special News @ Necklace!


Hi everyone,

TO VIEW JESSICA ON FOX TV - CLICK ON LINK:


http://www.youtube.com/watch?v=PW_vstm0bS8

SPECIAL NEWS: I have heard that the necklace is due to be launched this Saturday - Nov. 21st!!! As soon as I have all the info and links I will post them on the blog!!! Keep looking for the updates, as I know from the blog comments that you are all eager to see how beautiful it really is and to purchase one for your very own!!! I will post it as soon as possible so keep looking for the updates!!!

***There is going to be a special fund raising item that is going to be announced very soon. It involves a special necklace that was designed especially for Jessica and all the proceeds from the sales of this item will be donated to Jessica's Journey Savings Club! I have seen it and it is beautiful! It was made in honor of Jessica and her efforts to increase Lyme disease awareness, something that Jessica has been very passionate about since she has been battling that disease for the past four years as well! As soon as I have all the info and links, I will blog this SPECIAL NEWS and how it all came about and how and when it will become available!!!

Update on Jessica:

Please pray for Jessica today. She is still experiencing the increased pain in the right leg. Dr. "Green Shirt" (aka Dr. Cantu) is going to try a nerve block today during her ketamine booster to see if that helps with the pain. She is a fighter, as you all know. Let's pray that it works and that that is indeed the problem with the leg.

Also, Dr. Rainbow loved the "ketamine doctor bear" that I presented to her on her birthday yesterday. It was a "special" birthday for her and for us as well! Jessica and I can't thank her enough for all she does for us!

Also, special thanks go out to ALL OF YOU!!! It means so much to Jessica and I and our entire family for all of your prayers, all of your comments, all of your donations, but more importantly, for all of YOUR LOVE that we feel each and every day - even all the way here in Monterrey, Mexico!!! GRACIAS!!!

Till tomorrow,
Sarah Gina (Jessica's Mom)

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Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)


As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!


Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.


Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.


Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!