Hi Everyone,
Sorry I didn't blog yesterday, but it turned out to be one of those days. As you know, Jessica's vision, or static vision/visual snow, is still really bad and very worrisome. The specialized test was finally performed yesterday. It was an evoked potentials test on her eyes. Because of her extreme light sensitivity, they had to perform the test under semi-sedation. The test involves putting electrical stimulators on different parts of the brain and then having her wear special goggles that emitted various different lights into her eyes! If Jessica was fully awake, this test could not be performed. Even under sedation and really not aware of what she was saying, she still voiced the fact that the lights were too bright and that she had a severe headache, as well as it was not comfortable at all! The test results will be interpreted by the specialist and hopefully we will know if the problem lies in the eyes or in the brain. Also, the tests that were done a few days ago on her intestines because of the pain she was experiencing, detected that along with her gastroparesis, she sometimes has a condition called reverse peristalsis, in that, at times, her intestines push food upward instead of downwards and it is this that is causing her nausea and sometimes vomiting to occur. They are putting her on a motility medication and a highly specialized liquid feeding in her J-tube to see if this alleviates those symptoms. Please continue to keep her in your prayers. I will keep you all posted as to the eye test results. Also, we still cannot resume the ketamine boosters, which are crucial, until we know whats going on with her eyes!
Also, yesterday, I had one of those days where I wasn't feeling well myself. You see, through all these past 4 years, God has been tremendously good to me in keeping me healthy to take care of Jessica, and my husband who has Crohn's disease, as well as my other two daughters, and I am so grateful for that! But, yesterday, I stepped out of the "safe" box and apparently ate some Mexican food which did not agree with me and .....well....you know the rest of the story....and so, between Jessica's tests and my problem, there was no blog yesterday! Sometimes you live and learn, as my father used to say! I will not eat that again!
Hope you are all well and we thank you all for your prayers and concerns for us here in Mexico. God is good - he sees you through the good days and the bad days and sometimes - he "carries" you as well.
Remember - the Will of God will never take you where the Grace of God will not protect you!!!
Also - on a happy note - a fellow coma patient - Justin Brown from Pennsylvania, will be leaving the hospital today!! He has been here 2 1/2 months and it was his dad Rick and mom Joan, who were so helpful to me when Jessica and I first got here on August 20th. We will miss them, but are so happy for Justin to be able to return home and try to continue his road to recovery. He will do it - he's a fighter - as are all the people that have to deal with this terrible sickness called RSD!!! Good luck to Justin and his family. (remember the "Ice Pops")
All my love and Jessica's too,
Sarah Gina
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Good morning ladies! What a glorious day it will be when they have the solutions to the static vision!! I pray it comes today!! Having been with you during some of the exam times I can picture how hard it was on Jessica to have the vision testing done. Sweet Jessica may your eyes see clearly now that they will be finding the results of the testing and :>)) to come up with a remedy.
ReplyDeleteOh Sarah Gina ... honey...you ate the food! Glad that's over, eh!!! So many times I wanted to enjoy the wonderful smells of the cooking, (being such a Mexican Food lover) so I can see how you got tempted too.
By to Justin!! Happy trails! Love Nancy
oh yes
ReplyDeletethe Mexican food and water.
Remember the time I landed in the hospital upon my return from Cancun-only drinking a soda with Mexican water for the ice.
It is a horror.
Hope you are doing better today
Prayers,
Linda M
Gina and Jessica,
ReplyDeletePray and look forward to you both having hope fulfilled with new progress on recovery with the chance to enjoy the time with family and friends for the upcoming holidays.
Each day as we finish our day as a family, our thoughts turn to both of you and your family in GC with renewed hope for progress and a few steps closer to you all coming home.
You all bring to mind what is best in families and help us reflect on what is most important in life.
Best Regards,
Bill, Kathy, and Julia.
I saw Jessica's story on the news today.... I'm praying for her and you!! Not only is she strong, but you are too!! Having kids, I can't imagine what you must be going through... I'm praying for her!! I will pray for her until I read a post that says "Jessica feels great!! ...and is going back to school to pursue her dream of being a doctor!!"
ReplyDeleteConnie