Sunday, June 12, 2011

Out of the hospital!!

Hi!

I am writing this update from my bedroom back in the apartment here at my Mexico home away from home!

I know. I still can’t believe it either…After only spending 8 days in the hospital! With my first stay at Hospital San Jose being 10 months and my second stay lasting nearly 3… this is definitely a personal best! The past few days seem like a big blur to me. I am physically and emotionally exhausted but I am so happy to once again be out of the hospital!

I had my surgery Wednesday evening. I was wheeled downstairs to the operating room at 4:30 pm and got to see the doctors, residents, nurses and technicians before going into the OR. Everything with my surgery went very well.

Thursday morning Dr. Balli came up to my room and entertained me with the ‘story’ of my surgery in colorful, vivid and lively description—as only he can.

I got to hear every detail of how he cut through the layers of my skin, muscles and nerves, carefully moving each out of the way as he went down deeper, following the ‘tract’ that this granuloma had formed, while trying to both find and remove the source of it as well. He ended up having to go deeper than he had wanted or anticipated, down to my small intestine, but we are very thankful that he did not have to actually cut out any of my intestine to fully remove this thing- which would have turned this into a completely different surgery and recovery altogether.

What is even cooler is that none of these ‘images’ were left for me to picture with my own imagination because Dr. Cantu took several pictures during the surgery with his Iphone! I wish I could post them on here for everyone to see, but however cool these photos are to me, I’m not so sure everyone else would think so. I have never had pictures of any of my procedures before and I’m really thankful that Dr. Cantu did this for me. Well, actually, I’m really thankful for everything that he has done, continues to do and will do for me. But I could write a novel about all of that and this is already getting long… so anway…

Thursday afternoon I had another Ketamine booster to help control my pain. I than started running a low grade fever. We believe it was either due to the iron infusion I had earlier in the day, or from the blood and plasma transfusion I had before surgery (yes… I am now even more Mexican!).

Yesterday morning the fever was gone and I was feeling better, so It was decided at that point that I needed to get out of the hospital before any infections could develop. I will continue on IV antibiotics and medications here at home as I rest and recuperate.

It’s still unbelievable that all of this happened only 3 days ago. More unbelievable still is how well I am doing post this surgery. In the past, after any type of procedure, I have woken up down in the recovery room screaming and in explosive RSD pain burning through my entire body... the type of pain that is un-extinguishable even with the strongest medications.

This time was different. Yes, obviously, I am in pain, as I was cut open. But the difference is that this pain is is localized in the general area of my surgery and not igniting a lightening storm of RSD pain in the rest of my body. A ‘normal’ person would probably consider the pain I am feeling post surgery to be a high level, but when you have been through the horrible pain of RSD, this pain seems minimal and manageable.

Having an RSD flare up was my biggest fear about the surgery and this is huge relief and answer to prayer! It is proof to me of just how much healing has taken place in my nervous system and body as a whole because of the treatment that I have had here.

I definitely think that the five days of Ketamine infusion I received prior to surgery, along with using it during the surgery, along with the heavy amount of local and general anesthetics and surgical technique that were used… all played an important role in the outcome. Dr. Cantu and his team are learning more and more about how to handle an RSD surgery case and I am grateful for the doctors here who are willing to listen and to learn from their patients.

I know that God placed me in the best hands possible having this done here. We praise God for the healing that has taken place in my body. For the skill and wisdom of my doctors. For the amazing people he has placed into our lives to cater to our needs and help us through this. For being who He is—a God who continually does more than we can ever ask or even imagine.

I ask for continued prayers for my Dad, who will hopefully be leaving his hospital in NY sometime today. For continued healing in my GI system, that the removal of this granuloma will now allow my system to heal and work normally again. For strength and patience as I recuperate from my hospital stay.

Please also continue to keep all who are suffering with illness and pain in your thoughts and prayers too.

I will update again in a few days. Thank you all for the continued support and prayers.

Love, Jessica


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11 comments:

  1. Absolutely FABULOUS news! God is great and worthy of praise.

    I am so glad this did not start up a flare (prayers answered). Yes, your nervous system has definite healed quite a bit.

    The information the doctors have learned from this will definitely help other patients.

    We will continue to pray for COMPLETE healing and patience as you wait!

    I am glad you got pictures. Isn't the human body amazing.

    With love and prayers,
    The Turners

    Proverbs 3:5-6
     5 Trust in the LORD with all your heart
       and lean not on your own understanding;
    6 in all your ways acknowledge him,
       and he will make your paths straight.

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  2. - Hello Jessica, i just recently found about your story. I'm a former anesthesiology resident (now planning to do rehabilitation medicine) here in mexico, and by chance i came across your story on youtube. I think you are a wonderful and corageous woman. I'm really happy to see all the progress you have made and how you are recovering. I sincerily wish you the best and i'm sure you will overcome this (and any)affliction that could ever come your way.

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  3. Tears of joy streaming down my face.

    Thank you God!

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  4. You rest and recover while we take our cue from King David leaping and dancing before the LORD.

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  5. Dear Jessia,

    Welcome Home Sweetheart! Wow, oh wow! What a story. What a journey. Man oh man...we get such inspiration from your strength! It has gotten us through some hard times. One thing we have learned in our RSD journey is that no one gets through this alone. We all need our family and friends and we need our Faith. We have seen our own Faith in God grow as we came to learn that so much in this life is totally out of our control. It is in all in His hands. We must learn to trust Him and believe that He knows what is best for us, even when we cannot see any logic. God has used you to reach so many others. We are grateful for His leading us to you and your family. We will continue to pray for all you have asked for as we look froward to watching your progress.

    Rest now, your body needs to recover and where better to do so, than in your "home away from home" in the loving hands of your amazing Mother!

    God bless you both and your New York family too.

    Love & xoxoxo,

    Rosemary and John

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  6. http://www.anapsid.org/cnd/diffdx/hypercoagulation.html

    Hypercoagulation (thickened blood) results from fibrin being deposited in small blood vessels. Fibrin is the body's natural bandaid: strands of fibrin form across a defect (wound, tear) in the walls of blood vessels, forming a mesh that holds platelets and blood cells. This beneficial clotting of cellular matter and fibrin strands plugs the leak, so to speak, holding things together until the body starts to repair itself.

    Fibrin production is the last stage in a complex clotting process. The process itself starts off with the release of thrombin which in turn results in the production of soluble fibrin monomer (SFM), a sticky protein that increases blood viscosity. This leads to the deposit of fibrin on the endothelial cells that line the wall of the blood vessels. Under the normal conditions, it takes only a single burst of thrombin to generate a large amount of SFM which in turns produces sufficient amounts of fibrin to clot the defect. Testing of many patients diagnosed with CFS, FM, MPS shows that the thrombin-SFM-fibrin process is not working properly. Instead of a single burst of thrombin producing the amount of SFM needed, the thrombin keeps being produced at low levels. Instead of clots being formed, however, the result is that blood becomes increasingly thickened. The body's own ability to thin blood and break up clots is impaired because the fibrin smothering the endothelial cells prevents those cells from releasing heparans.

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  7. Amazing Grace

    And grace my fears relieved ...

    You continue to be in our thoughts and prayers.

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  8. What a blessing to be out of the hospital already! There is much learning going on and especially in the personal case of Jessica and her body! God has planted you on this path to healing and it will continue as it has done. Let's hope and pray that the surgery will be all that is necessary to complete this part of His work. Thanks for the update from your own words, Jess. Miss you both!

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  9. We are happy your last hospital stay was short. Thanks for the update. We will continue to pray for you, your dad and your entire family.You are always in our thoughts and prayers.

    Ashley,Paula,Ray and Kevin

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  10. Hi Jessica! So glad to hear you are home a few days after surgery. You continue to be amazing! You and Mom get some rest. I'll talk to you soon!

    Love, Carol xxoo

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  11. Jessica, Another amazing story, hope that book is in the works,you tell a great story, as does your mother. We are thinking of you all the time and your indominatible spirit and strength. Give Dr. Cantu a hug and a kiss from us.

    xo Cathy and Devon

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