November is national RSD Awareness month.
When left undiagnosed and untreated, intractable pain and other disabling symptoms occur, including extreme sensitivity to touch, lights and sounds, severe headaches, numbness, weakness, movement disorder, paralysis, ulcerative skin lesions, seizures and softening of the bones. In its later stages, RSD can lead to internal organ dysfunction and cardiac complications. Patients may become unable to digest food, maintain stable levels of blood pressure or regulate their body temperature. RSD can ultimately ravage the entire body and its organs.
On the medically accepted McGill Pain Scale, where zero equals no pain, and fifty equals the most intense pain, RSD is ranked as a 46/50-- making it the most painful disease known to medicine!
RSD is ranked higher than pain from a bone fracture (20), cancer (24), childbirth (32) and even above amputation (38)!
Imagine if every touch cut like a knife, every breeze felt like a blow torch and even a gentle hug caused you to feel as if you were being electrocuted, if every pain medication available to you was completely ineffective?
That is what RSD feels like. And it is horrific.
Well-meaning people have said over the years, "God only gives you what you can handle...He knew you were so strong!" ... That's a nice sentiment, but it's simply not true.
On all fronts, this battle has been sooo much bigger than me, far beyond what I could ever handle, way beyond my own strength....but it has never been bigger than God.
I am so thankful for the healing power of Jesus displayed through the wisdom and knowledge of Dr. Fernando Cantu & Dr. Luis Barrientos, who saved my life! I am so thankful for my family who fought by my side, and I am so grateful for the many prayers that sustained me.
Every day that I wake up without that pain and those symptoms, I still nearly cry from shock and happiness. :)
I am blessed to be in remission... but there is still NO CURE for this horrible disease. There are a lot of people still suffering, with no way out.
I also still live with uncertainties about the future... Will I ever walk again? Stay in remission? Live a long healthy life?
Those are questions bigger than me, but again, not too big for God. I believe with my entire being that the answer to my questions is 'yes', but no matter what the future holds, I will be okay, because I know I will have Jesus' strength in my weakness,
I want that feeling of joy I feel each morning to become a reality for all RSD sufferers.
So I am making this post as a reminder to please pray for them, that they will experience healing, peace and comfort. RSD is often called the "suicide disease", because so many patients lose hope, they don't see another option. They are tired of the pain. I lost my dear friend John this past year, and it is the most devastating and helpless feeling.
We need awareness. We need research into the causes/triggers for this disease, We need physicians to begin recognizing ketamine infusion therapy as the standard of care in treating this disease, and for insurance companies to cover the costs, but above all of that, we need a long lasting cure. That is my ultimate prayer.
Never lose hope...
"And nothing formed against me shall stand." (Isaiah 54:17)
To learn more, watch the following. Awareness is key! Thank you.
I love you Jessica. Thank you for all you are doing to raise awareness about this little known, misunderstood, indiagosed, misdiagnosed, mysterious, excruciating and life altering disease. Thank you for remembering John so his death was not totally in vain. May God bless you always with total remission and the ability to fight for those who cannot, speak for those who cannot and work with your wonderful doctors. May there be a cure in our lifetime for RSD/CRPS. No one should ever have to suffer such horrid pain that is described as being burnt alive and no one should ever be forced to sit hopelessly by to watch someone they love disappear before their eyes. Thank you, dear lady. I love you and John loved you very much. xoxo, Rosemary
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ReplyDeleteUnfortunately there are a lot of AIDS/Herpes denials on Herbal cures still out there. I did research on them after I was tested HIV/Herpes positive I was so worried am I going to die soon. I continue my search again on herbal remedy for Std, then I found lots of testimony on how Dr Itua Herbal Medicine Cured HIV/Aids, Herpes Virus,Copd, Hepatitis,Shingles, Diabetes,Epilepsy,Infertility, On websites sharing their testimonies, which made much more sense to me. All the authors pronounce Dr Itua As a man with Good Heart, I pick interest in their testimonies and I contact him about my situation then he gave me procedure how it works, I proceed after one week he courier his Herbal Medicine to me and instruct me on how to drink it for two weeks to cure. I receive His Herbal Medicine so I drank it for two weeks as I was told then after 2 days I go for a test I found out I was cured from HIV/Aids & Herpes Virus, I pay homage to him 2 months ago to his country to celebrate with him on his African festival which he told me it usually happens every year. I know there are lots of (HIV)/Aids&Herpes Virus denials of Herbal Remedy movement the same few doctors and they represent a very small faction of the community. I could have died because I refused Natural Herbs Cures for so long, but luckily, by the grace of God I am alive to tell my story. Contact Info...Whatsapp Number...+2348149277967,Email...drituaherbalcenter@gmail.com/My Instagram Username...avat5634 Just in case you need someone to talk with.
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ReplyDeleteI want to make this testimony public and as a sign of gratitude to Dr Bharat. On how he saved my husband from Huntington's disease with his herbal medicine called BUJA, i decided to reach out to those still suffering from this disease.
ReplyDeleteMy husband suffered Huntington disease and it was really tough and heartbreaking for me because he was all i have and the symptoms were terrible, my husband experience hallucination, depression, anxiety, abnormality walking, involuntary movement and memory impairment. We tried various therapies prescribed by our neurologist but none could cure him instead the situation got worsen each day that passes by. I spent much money yet no improvement, I really do not want my husband to die so i searched for a cure on the internet and i bumped into a testimony of (Ronda Jasil) who got cured from Huntington's disease. and she left the e-mail address of the Herbal doctor who has the cure of Huntington disease. I never imagined Huntington's disease has a cure until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one month we started seeing improvement, now is been 1year and 6 months my husband is okay and full of life again. Huntington's disease has a cure and it is a herbal medicine called BUJA. contact doctor Bharat now on dr.bharatkings@gmail.com Thanks for reading my testimony
Hi everyone, this is good news, a perfect and greats one. My daughter of
ReplyDelete38years who has suffered of Huntington's disease for 2 and half years has been
cure by a Herbal doctor called Dr Bharat who uses herbal and traditional
medicine to cure people. I have spent so much money on my daughter's health for
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In 2 weeks i started seeing great improvement, exactly 8weeks we went to confirm from the central hospital and several test that
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My sister had severe Muscle problems, abnormal eye movements, Difficulty with the physical production of speech, memory lapses. she was placed on tranquilizers 3 times daily, it helped her but not very much. Her neurologist advised us to try natural treatments and introduced me to Natural Organic Herbs, {Huntington disease Herbal formula}, I visited his blogs and read a lot of positive reviews from other patients who used the treatment and made my orders. We immediately started on the treatment for my sister. she had great improvement and relief with this treatment, total decline of symptoms. All her symptoms left and she has been reserved from Huntington Disease. Great improvement with speech, co-ordination, balance, muscle, mood etc, I gained back my life with this herbal treatment and can never be thankful enough. Visit Natural Organic Herbs, reach him directly via {dr.bharatkings@gmail.com}. She's now living like a normal person without any symptoms of Huntington Disease. All thanks to Dr. Bharat
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