Blessings from Mexico,
To view Jessica on Fox TV, Click on Link Below:
http://www.youtube.com/watch?v=PW_vstm0bS8
Yesterday began with another visit downstairs for Jessica. She had to have a mini-surgery to remove her catheter and place another one in on the other side. She is still experiencing fevers and high blood pressures due to the infections and so the doctors felt it was necessary to change the catheter. While she was down there they also decided to take care of a pressure ulcer on her left foot. As I said before, it is always an "adventure" when Jessica is in a hospital. As it says in the bible in Romans 5:3&4: "Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance produces character; and character produces hope!" Our hope for Jessica is to continue to climb this "sickness" mountain, step by step, to ultimately get to the other side, or the "wellness" mountain. As it says in the bible in Psalms 46:1: "God is our refuge and strength, an ever present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea".
Also, yesterday, my two daughters Katherine and Michelle were invited by Dr. Cantu's wife Gloria and daughter Pamela, who is 14, to go out to lunch and to the local mall called the "Palacio de Hierro". They went with 3 other friends of Pamela's as well - Roberta, Vanessa, & Luciana. Gloria dropped them off at the mall. They ate in a restaurant called "El Diego" and Pamela and her friends translated the menu for them from spanish to english. Michelle had empanadas for the rest time. She loved them. Katherine, my picky eater, played it safe and had grilled chicken in an argentinian sauce - she said it was delicious. The girls will now stay in touch thru facebook. A fun time was had by all!
Dr. "Green Shirt" (Cantu) leaves today for a vacation to Texas with his family. He leaves Dr. Luigi and Dr. Chavez in charge while he is away, but, I will be perfectly honest, the "ship" doesn't run as smooth when he is away. He "knows" his patients. As with anything, when the "Boss" is away, things are different. We do hope, though, that he has a well deserved vacation with his family!
Till tomorrow,
and in God's love,
Jessica's Mom *
***To post a Comment, CLICK on Comments below***
Jessica's Journey to Getting Her Life Back
By Sarah Gina (Jessica's Mom)
As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!
Jessica’s Story
Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.
Jessica and her sisters, 2 mos. before becoming illThe pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.
She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!
Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.
Jessica's painful skin lesionsJessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.
Jessica, age 15, at summer campFour years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!
At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.
Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.
July 2003, Jessica's Lyme disease rashDuring these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.
Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.
Jessica getting into the air-ambulance to go see Dr. KirkpatrickUpon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.
During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.
Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.
We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.
Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….
We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.
God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!
33 comments:
1 John 5:3-5
3This is love for God: to obey his commands. And his commands are not burdensome, 4for everyone born of God overcomes the world. This is the victory that has overcome the world, even our faith. 5Who is it that overcomes the world? Only he who believes that Jesus is the Son of God.
Our hope and prayer is that Jessica will be well again (and soon).
We thank God that you have been able to spend time with your family and we are glad to hear Dr. Cantu will have the same opportunity. Perhaps he will come back rested and rejuvenated ready to continue ministering to all the patients there.
May God bless your faith and heal your sweet Jessica SOON!
With love & prayers,
The Turners
I am so happy to know that Michelle and Katherine are in Mexico with you! I pray that each day Jessica will get stronger and better:) Crystal
I am so happy to know that Michelle and Katherine are in Mexico with you! I pray that each day Jessica will get stronger and better:) Crystal
I am so happy to know that Michelle and Katherine are in Mexico with you! I pray that each day Jessica will get stronger and better:) Crystal
Hi Gina and Jessica
Sorry I haven't been on the blog in a few days. First, Merry Christmas. It sounds as if you did enjoy your Christmas in Mexico and I'm sure it is one all of you will never forget.
Second, my prayers will continue for Jessica as she continues to climb the "sickness" mountain and take baby steps towards a full recovery.
May God continue to watch over you and Jessica in Mexico and that the catheter change will help with her infections.
God's Peace
Jenn
I am sorry to hear that Jessica is still fighting the fevers. Will continue to pray. God can and does move mountains and this mountain for Jessica will be moved in time. It is the waiting that can be brutal! "Those who wait upon the Lord will renew their strength. They will mount up on wings like eagles. they will run and not grow weary, they will walk and not faint.| Isaiah 40:31. A promise to cling to and the knowledge that God will and does sustain you for the ride!
How wonderful for your other two children to be able to have an adventure in Monterrey. The Cantu family has been touched by God to be your support system in so many ways. Such memories and new friendships that have been made in this time of adversity! There is always a blessing to be found somewhere.
I will be off to speak with my GP this morning and begin the arduous task of trying to figure out what is really going on with my care. I will send you an update via email when I return.
Have a wonderful day with your family today.
My prayers are for you all
Fern
dear jessica,
i am inyour hospital room right now. i love you very much and can see many improvements. you can see and have no sunglasses itis very bright in this room.! im am still confident you will be cured! believe in God. He is the healer and creater of heaven and earth. but those who hope in the LORD
will renew their strength.
They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint.
Isaiah 40:31
We are so glad to hear that Jessica no longer needs to wear sunglasses (another improvement)! God is good!
One small step at a time! It is hard to see the improvements when you are going through them. It is easier to see them in hindsight!
Your family has great faith!
Hebrews 11
1Now faith is being sure of what we hope for and certain of what we do not see.
May God bless your faith and heal your sweet Jessica!
With love & prayers,
The Turners
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