Hi to All,
To view Jessica on Fox TV, Click on Link Below:
http://www.youtube.com/watch?v=PW_vstm0bS8
Prayers For Today:
1. Please pray for Jessica today. Yesterday her J-tube had to be removed due to recurrent infections and the fact that it had become colonized. Another one was not placed at this time in order for the site to heal. She is still on IV TPN for her nutrition and we will try to increase her liquids and intake by mouth. The hope is that we don't have to put another J-tube in, as that will require surgery. Also, please keep praying for her pain to lessen and for the lesions to lessen as well.
2. Pray for Fern Kwantes who arrived here yesterday from Canada with her friend Kathy. She is in the room next to us and is receiving her necessary boosters. Please pray that they help her pain as well.
3. Pray for Elena who is in the coma right now and for her husband Lance and his Mom Abby that are here with her. They stopped by to chat yesterday and brought me coffee - Thanks!
4. Pray for all those afflicted with and still struggling with RSD.
5. Pray for all those afflicted with and still struggling with Lyme disease.
In God's Love,
Sarah Gina (Jessica's Mom)*
"Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours". Mark 11:24
"You will pray to Him, and He will hear you". Job 22:27
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Jessica's Journey to Getting Her Life Back
By Sarah Gina (Jessica's Mom)
As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!
Jessica’s Story
Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.
Jessica and her sisters, 2 mos. before becoming illThe pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.
She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!
Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.
Jessica's painful skin lesionsJessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.
Jessica, age 15, at summer campFour years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!
At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.
Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.
July 2003, Jessica's Lyme disease rashDuring these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.
Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.
Jessica getting into the air-ambulance to go see Dr. KirkpatrickUpon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.
During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.
Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.
We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.
Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….
We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.
God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!
11 comments:
It is always so good to see you, despite the circumstances, and yesterday was no different.
Thanks for the hospitality gifts that you brought us. I look forward to trying them when I am allowed to eat again
I look forward to popping in to see Jessica this afternoon after my second booster (if all goes well). I hope she will be up for a visit then.
Love you
Hi, Sarah,
Am praying for you and all the others suffering still. My bible study group is too. I'm glad to know that you are not there by yourself anymore. You have support and that's so important. Love you,
Gloria
Daniel 9:17-18
17 "Now, our God, hear the prayers and petitions of your servant. For your sake, O Lord, look with favor on your desolate sanctuary. 18 Give ear, O God, and hear; open your eyes and see the desolation of the city that bears your Name. We do not make requests of you because we are righteous, but because of your great mercy.
We will join you in your prayers.
May God continue to give you both the strength to get through each and every day.
With love & prayers,
The Turners
Sarah,
Robert is going to LA on Sun for a ketemine booster. It is his first since last Aug. Someday Jessica will go 6 months between boosters. I can see her laughing and happy in my mind.
Marcy
prayers for all those on your list and for those who have no one to pray for them.
Saratoga Linda
seems strange that everyone is getting so much snow this year except us.(of course, December snows are still on the ground because it is sooooo cold)
prayers for all those on your list and for those who have no one to pray for them.
Saratoga Linda
seems strange that everyone is getting so much snow this year except us.(of course, December snows are still on the ground because it is sooooo cold)
Jessica & Sarah Gina,
I can't imagine what the four walls are starting to look like in your room down there. Who knows maybe if you ask Cantu they will let you paint and re-decorate the room to your own taste. J/K. You are in our daily prayers. Remember this process is one day at a time. Keep trying to drink those fluids. That is such amazing progress. Before you know it, you will want that amazing Mexican green jello and then the famous Lindsay Spengler strawberry smoothie. You have an unbelievable fight in you to beat this. So, don't ever give it up no matter how hard it gets.
Suzie Hyatt
In many cases, hyperuricemia does not lead to gout. Knowing the facts surrounding your child's disability will help you to ask the right people the right questions. Benefits of Glutathione Complex as an Immune System Booster. I had a friend in college (not kidding!) that didn’t know how to read food labels.
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