Wednesday, December 9, 2009

Gods Blessings To All!!!



This is my one of my favorite pictures of Jessica. It was taken the Christmas before she became ill. She is in her Christmas pajamas!





To order Jessica's necklace, Click on NEW Link Below:

http://www.etsy.com/view_listing.php?listing_id=35743111.

To view Jessica on Fox TV, Click on Link Below:


http://www.youtube.com/watch?v=PW_vstm0bS8


Blessings to our family & friends,

Thank you all for your special prayers for Jessica. She has certainly had her struggles these past four years, and yesterday was no different. The fever she was experiencing seems to have lessened and tests were run to rule out infections and to try to figure out the source. I will keep you all posted. Dr. Cantu put her on a medication to help ease her pain and to help her get some needed rest. Let's hope it works and that today will be a little better for her than yesterday!

What I have come to realize since we have been here is that God does have better things, or more exciting blessings, in store for all of us. For some it may happen tomorrow. For some it may happen next week, next month or even next year. We don't know when. For some......it could happen today! But the beautiful blessings about this journey called faith is that we can count on Him to never lead us astray. He knows exactly where he is taking us. Our job is to trust in Him and obey.

Please pray for Jessica today. Pray also for Dr. Cantu's other patients that are here as well- Justin Brown from Pennsylvania and Elena Cohen from California. Justin is back for boosters, he did the ketamine coma in July of this year. Elena was one of the earlier coma patients, back in 2007. She periodically comes back for boosters as well! Please pray for all former coma patients and all people that are suffering with RSD, as well as those suffering with Lyme disease, cancer, Crohn's and other illnesses as well! Also, pray for the doctors who are working so hard to find a cure! (Especially Dr. Cantu - who is a tremendous doctor with a heart as pure as gold! He's amazing!)

In God's love,
Sarah Gina (Jessica's Mom)

"I will strengthen you, surely I will help you, surely I will uphold you with My righteous right hand".
Isaiah 41:10

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Tuesday, December 8, 2009

Special Prayers Needed Today!!!


Here are Jodi Lepp (left) and Joanne Hartmann (right) wearing their Jessica's Journey Necklaces!




To order Jessica's necklace, Click on NEW Link Below:

http://www.etsy.com/view_listing.php?listing_id=35743111.

To view Jessica on Fox TV, Click on Link Below:


http://www.youtube.com/watch?v=PW_vstm0bS8

Special Thanks go out to Lisa Reber and her Stampin Up Friends for organizing the Vendor Fair in Naples, Fl. for Jessica's Journey Savings Club. I heard it was such a success! Special shout out to Chris Reber & Michael Disk for running the bake fair and for all the people who donated baked goods. Also, special thanks go out to Joanne Hartman, Wendy Ihrig, Laura Meyer, Giulia McCutcheon, Janelle DunFre, Ann Abenanti, Karen & Dave Collins, Jeff & Thomas Reber, Angela Harber, Tonya Baff, Tasha & Patty Baer, Kim, Jodi Lepp, and Nancy Sustersic and everyone else who helped!
Special thanks also to the North Naples Fire Department for coming to the event on such short notice!
Once again, the human spirit of giving is alive and well in Naples, Fl.!!! We are so appreciative to all of you for ALL of your efforts for Jessica and our family!!!


SPECIAL PRAYERS NEEDED!!!!!!!!!!

It was a bad night for Jessica, as last night she started with a low grade fever and other issues surfaced as well. She is a fighter and she will get through this, with God's help. Kindly lift her up in prayer today with special prayers directed towards just helping her get through this day! Thanks so very much!

Jessica's Mom
xoxo

Jesus went through Galilee, teaching in their synagogues, preaching the good news of the kingdom, and healing every disease and sickness among the people. News about him spread all over Syria, and people brought to him all who were ill with various diseases, those suffering severe pain, the epileptics, and the paralytics, and he healed them.
Matthew 4:23-24

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Monday, December 7, 2009

""The Christmas Package""


This necklace is dedicated to Jessica's struggle with Lyme Disease and RSD. It was made to honor her commitment to Lyme disease awareness by Lymelinks.




To order Jessica's necklace, Click on NEW Link Below:

http://www.etsy.com/view_listing.php?listing_id=35743111.

To view Jessica on Fox TV, Click on Link Below:


http://www.youtube.com/watch?v=PW_vstm0bS8

Special thanks go out to two special visitors that came to see Jessica yesterday. Our dear Dr. Rainbow had told them about Jessica and they came to offer special prayers for her and for her healing! We were honored to have Sister Damiana and Sister Juana Teresa from "The Disciples of the Lord Jesus Christ" pray with us! I can honestly say that I felt the spirit of the Lord present in the room yesterday! Thank you again for all your love and prayers and may God watch over your journey to the states in the coming weeks - have a blessed Christmas!

Blessings To All,

"The Christmas Package"

I remember the first few weeks we were here at the Hospital San Jose Tec. It was after Jessica had just come out of the coma and didn't even know who she was or who I was - she had lost her memory! Those three weeks without her memory were tough! I was so distraught; it was a very difficult time! I remember Dr. Cantu (aka Dr. "Green Shirt") trying to reassure me, as only he can, that her memory would come back eventually, but that Jessica's "road to recovery" would be long and hard. That due to the complexity and severity of her illness, and her being one of the most debilitated cases they had seen, that the hope would be, barring any setbacks, to "unwrap" and open a beautiful "Christmas package" with Jessica. That it could take that long but that it could happen!

Let me tell you a story about Jessica and her 1st Christmas and her "unwrapping" her presents:

I remember the first Christmas we celebrated with Jessica - December 1988. As she was our firstborn, it was our first as parents and Jessica was only 11 months old. We had carefully wrapped and put all of her presents under the tree in our very first home on Huntington Road. Since it was her first Christmas and we were so excited, we may have gotten a little carried away - she had 10 presents under the tree! We had waited over 5 years for God to bless us with Jessica and I think we were more excited than her that Christmas morning!

I will never forget her face that morning when she saw the tree and all the boxes underneath it. She didn't know what to do first - so - she ran - or should I say "waddled" all the way over to the tree. We sat her down in front of the tree, got the camera ready, and proceeded to see what she would do next! I remember thinking to myself as she carefully "unwrapped" her presents - Which one would be her favorite??? Would she like the little baby doll that I had chosen for her, or would she like the Little Tykes train set her Dad had picked out for her?

To our shock and amazement, it was neither! You see, she was more interested in the boxes and the "unwrapping" of them all! She didn't care what was inside the packages, only how to get them unwrapped. I remember saying to my husband David that we could have saved a lot of money and just wrapped empty boxes and she would have been just as happy!

So, while we are here in Monterrey, that is what she and the doctors are doing as well! Just as Dr. Cantu had said in the very beginning, the hope is to carefully "unwrap" the present, piece by piece, and eventually open the new "package", one that will hopefully be "empty" or free of pain and sickness - a new Jessica, a new "unwrapped" Christmas package"!!!

Please pray for Jessica today and the struggles that continue from yesterday. Pray for the eyes, the pain, intestinal problems, headaches, and the continued improvements. Pray for these "pieces" of her illnesses to continue to be "unwrapped" or torn away and for a beautiful new Christmas package to unfold!!!

In God's love,
and in anticipation,
Sarah Gina (Jessica's Mom)

"Therefore, if anyone is in Christ, he is a new creation; the old has gone, the new has come! 2 Corinthians 5:17

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Sunday, December 6, 2009

19 Days Till Christmas!!!

SPECIAL NOTICE: I have just heard from the Mah Family at Lymelinks that they have brought in extra help - so if you want to order Jessica's necklace for Christmas presents, they can be ordered thru this weekend at the link below and they will arrive in time for the holiday!!!

This necklace is dedicated to Jessica's struggle with Lyme Disease and RSD. It was made to honor her commitment to Lyme disease awareness by Lymelinks.

To order Jessica's necklace, Click on NEW Link Below:

http://www.etsy.com/view_listing.php?listing_id=35743111.

To view Jessica on Fox TV, Click on Link Below:


http://www.youtube.com/watch?v=PW_vstm0bS8

FUNDRAISER TODAY IN NAPLES, FL:

Holiday Bazaar & Vendor Fair
Today = Sunday- December 6th - 2:00 - 5:00 PM
Indigo Lakes Clubhouse-Naples, Fl.
Call Nancy (419)350-9058 for gate code

***Put on by Lisa Reber & her Stampin Up friends, and, Joanne Hartmen & Team Jessica!!!***

Over 20 Different Vendors - Door Prizes every 15 mins.!
Bake Sale run by Oak Ridge Middle Schoolers!
***Bring your family & Friends!!!***

Hi to all our family & friends,

Please pray for Jessica today as she has not been feeling very well these past few weeks. The gastrointestinal problems coupled with the pain she has been experiencing on the entire right side of her body and the severe headaches and vision problems, have made her feel like she "has been hit by a bus". Dr. Cantu ("Green Shirt") gave her a booster yesterday and he is trying everything he can to get her to feel better. Dr. Rainbow also came by, as she does every day, and brought her custards and some other things to try as well. Thank you all for all your continued prayers for Jessica's healing! Pray that she feels better really soon.

I can't believe how quickly the holiday season has come and how very soon another Christmas will be upon us! We have decided that it is important for us to be together for Christmas, as we have never had one apart, even though the past few have not been all we had hoped for with Jessica so ill. So David has checked with his doctors and is cleared to come to Mexico for a few days with our other daughters Katherine and Michelle. I can't wait to see them since the last time we were together was in August before coming to Mexico! I have a small "Charlie Brown" Christmas tree in our room that was given to us by Pastor Browning when he was here from N.Y. Dr. Rainbow also bought us balls and tiny lights for the tree. The "angel" topper to the tree was given to us by Cecilia when she was here. So, when the family arrives, we will have "Christmas in Monterrey". It will certainly be a different type of Christmas for us, but, as long as we are all here and spend a few days together as a family, that's what is most important!!!

In God's love,
Jessica's Mom

"But when the kindness and love of God our Savior appeared, he saved us, not because of righteous things we had done, but because of his mercy". Titus 3:4&5

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Friday, December 4, 2009

21 Days Till Christmas!!!

SPECIAL NOTICE: I have just heard from the Mah Family at Lymelinks that they have brought in extra help - so if anyone is wanting to order Jessica's necklace for Christmas presents, they can be ordered thru this weekend at the link below and they will arrive in time for the holiday!!! Thank you and God bless!!!

This necklace is dedicated to Jessica's struggle with Lyme Disease and RSD. It was made to honor her commitment to Lyme disease awareness by Lymelinks. I have heard that people are already receiving their necklaces thru the mail and it is beautiful. They feel that it is another way for them to feel "connected" to Jessica from afar.


To order Jessica's necklace, Click on NEW Link Below:

http://www.etsy.com/view_listing.php?listing_id=35743111.

To view Jessica on Fox TV, Click on Link Below:


http://www.youtube.com/watch?v=PW_vstm0bS8

Blessings to All,

Upcoming Fundraiser in Naples, Fl.:

Holiday Bazaar & Vendor Fair
This Sunday- December 6th - 2:00 - 5:00 PM
Indigo Lakes Clubhouse-Naples, Fl.
Call Nancy (419)350-9058 for gate code

***Put on by Lisa Reber & her Stampin Up friends, and, Joanne Hartmen & Team Jessica!!!***

Over 20 Different Vendors - Door Prizes every 15 mins.!
Bake Sale run by Oak Ridge Middle Schoolers!
***Bring your family & Friends!!!***

UPDATE:

I can't believe that Christmas is only 3 weeks away. This is the season of Advent. It is the time of the year that lays the foundation for the celebration of Christmas. As we wait for that special day, we remain hopeful in the promise that God made to his people - the promise of restoration through the birth of our Lord Jesus. This was to be our gift from God - the true gift of "love". It is the most special time of the year that we rejoice and pray and give thanks for everything in our lives. It is a time of expectation as we wait for the coming of our Lord.
During Advent, we have the chance, once again, to receive Christ anew in our lives. To refresh and restore our faith with that ancient truth and future hope.

That is our hope as well for Jessica. To try to restore her body back to better health; and to renew our faith as well during this Advent season to know that all things are possible through Him who was born over two thousand years ago! As you know, Jessica has been struggling this past week with her gastrointestinal issues. She is also still experiencing problems with her vision and that has been very hard on her to say the least. But, just as we are waiting in anticipation for the "coming" of our Lord Jesus, so to, are we waiting for Him to do the impossible, because we know, through our faith, that all things are possible with Him!!!

So we ask that God bless you all this Advent season and in the coming year and may you all feel renewed and refreshed in His love!

Special thanks to Pastor David Long of the Union Church in Monterrey. He brought communion to Jessica and I yesterday and we are so very grateful to him and his wife and the entire congregation - they have all been a blessing from God to us!!!

In God's love, with hope,
Jessica's Mom


"Nothing is impossible with God" Luke 1:37

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Thursday, December 3, 2009

MY 100th POST TO THE BLOG!!

HI TO EVERYONE,

I can't believe that today marks my *100th* post to Jessica's Journey Blog --- Amazing!!! I thought I would re-post my 1st post that I made to the blog back in August. This journey - Jessica's Journey - has been taken by Jessica & our family, and ALL of you as well. I would personally like to thank you ALL for always being there for us and for sharing with us this most incredible journey! Our hope is to one day bring Jessica home healthy and well and to reunite her with family and friends, and also, introduce her to the people she has never met that have rallied around her in her time of need, and will join us in welcoming her home! What a glorious day that will be!

Here is my 1st Post to Jessica's Journey Blog:

To all our family and friends,


In exactly ten days from now - on Aug. 20th - Jessica and I will begin the journey to Monterrey, Mexico. It is our hope that this treatment will restore renewed health and well-being to our Jessica! Please know that we will carry with us all of your hopes and prayers, and I know they will strengthen Jessica in the difficult days ahead. It is our hope that by updating this blog daily, you can take this next step with us too, just as you all have been with us these past 3 years! Till tomorrow and in God's love.....

Please pray for Jessica today as she is still having a rough patch of days and is not feeling very well. On this 100th posting, let me just say that as her Mom, I have found over 100 more ways to admire my daughter! She is an amazing person who has been through so much, but has persevered with such determination and courage that I am so blessed to be called her Mom!

To view Jessica on Fox TV, Click on Link Below:

http://www.youtube.com/watch?v=PW_vstm0bS8


To order Jessica's necklace, Click on NEW Link Below:

http://www.etsy.com/view_listing.php?listing_id=35743111.


THANK YOU ALL FOR YOUR LOVE AND SUPPORT DURING THIS MOST DIFFICULT TIME. WE ARE HUMBLED TO HAVE YOU ALL TAKE THIS INCREDIBLE JOURNEY WITH JESSICA. MAY GOD BLESS YOU ALL!!!


May the road rise up to meet you.
May the wind be always at your back.
May the sun shine warm upon your face;
the rains fall softly upon your fields,
and until we meet again,
may God hold you
in the palm of His hands!!!

Till tomorrow and in God's love,
And with my 100th Post to all of you,
Sarah Gina (Jessica's Mom)

***To post a comment, Click on Comments Below***

Wednesday, December 2, 2009

Blessings to All!!!


Blessings from Mexico,

To view Jessica on Fox TV, Click on Link Below:

http://www.youtube.com/watch?v=PW_vstm0bS8


To order Jessica's necklace, Click on NEW Link Below:

http://www.etsy.com/view_listing.php?listing_id=35743111.


SPECIAL THANKS TO GCFD & OTHERS:

Special Thanks go out today to Bill Castoro - 2nd Assistant Chief of the Garden City Fire Dep't. in Garden City, N.Y. He organized and rallied the volunteer fireman to go out and sell raffle tickets for a 50/50 raffle to be held this month with proceeds going to Jessica's Journey Savings Club. We would like to personally thank him for all his efforts and all the members who went out and sold these tickets to help our Jessica and our family! We would also like to thank Marianne Quinn for selling 100 tickets to friends and family on her own and Cecilia Arango and her staff from Cecilia's Salon in Garden City, N.Y. who also sold 5o tickets to their patrons as well!!!
Words are not enough to express our heartfelt THANKS to you all for a job well done! May you all have a blessed Christmas, a joyous holiday season and a healthy New Year!!!

Upcoming Fundraiser in Naples, Fl.:

Holiday Bazaar & Vendor Fair
Sunday- December 6th - 2:00 - 5:00 PM
Indigo Lakes Clubhouse-Naples, Fl.
Call Nancy (419)350-9058 for gate code

***Put on by Lisa Reber & her Stampin Up friends, and, Joanne Hartmen & Team Jessica!!!***

Over 20 Different Vendors - Door Prizes every 15 mins.!
Bake Sale run by Oak Ridge Middle Schoolers!
***Bring your family & Friends!!!***

UPDATE ON JESSICA:


Jessica is currently on a different medication to help her with the problems she has been having with her stomach and intestines. We are also trying another sleep medication to try and get her some sleep - let's hope that it works! She received a booster yesterday to help alleviate some of the pain she is experiencing. As you know, and, as the doctors originally said when we first got here, Jessica's journey to wellness would be long and hard. She has been ill for quite some time and the body gets tired. We have seen the progress made and we know that God has brought us here to Mexico for Jessica to have a fighting chance to hopefully see the "light at the end of the tunnel". We pray for that every day, as we know you all do as well and we thank you for all your continued prayers.

The one thing I have realized is that God is pleased with us when we have faith. We must walk by faith and not by sight! Try to stop "biting your nails" for the weariness that comes with the worries of the day. When the tests come, try to relax and say to the Lord: " This is Your battle! This is the need you have asked me to put in your hands. I am trusting you for it. I am waiting for you to do it. I am willing to wait on You to do the impossible! " For, just like Mary & Joseph, we believe beyond what we can see, for nothing is impossible with You, Creator and Sustainer of all that is and will be!

"Casting all your anxiety on Him, because He cares for You".
I Peter 5:7

All my love,
Jessica's Mom

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Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)


As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!


Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.


Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.


Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!


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