Friday, November 27, 2009

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Hi to all,

We hope you had a wonderful Thanksgiving celebration! It was strange for me to not be home cooking the turkey. It is such a tradition for me to wake up on Thanksgiving morning and clean the turkey and prepare it for the oven for cooking. This is only the second time since I can remember that I did not cook the turkey. The only other time was when we decided to bring the kids into Manhattan to see the Macy's Thanksgiving Day Parade for the very first time. We had so much fun watching the floats go by, even if it was cold outside! We then walked from the parade route and had Thanksgiving turkey at the restaurant that overlooks the outdoor skating rink at Rockefeller Center. It was a different way to celebrate the holiday and a memorable one at that! I hope everyone had fun making their memories yesterday. For Jessica and I, we will never forget this Thanksgiving, spent at the Hospital San Jose in Monterrey, Mexico. Life is definitely a "journey"!

We would like to thank Dr. Rainbow for the pumpkin puree for Jessica. She enjoyed having it all day. I would also like to thank Adriana Castillo - a student resident here at the hospital who brought us delicious pumpkin pie from the local H.E.B. It meant alot to us! Also, special thanks to Pastor Long and his wife Sue and others from Union Church here in Monterrey, who brought over a whole thanksgiving feast with all the trimmings for me to share with the other american patient, Justin and his dad Rick. Also, to Barbara who stopped by with goodies as well! Thanks - Muchas Gracias!

UPDATE:
Jessica is still experiencing pain on the right side of her body. She is also experiencing some intestinal issues as well. The hope is to not have to go down to ICU today for another procedure to remedy that issue. She will also be receiving another booster today as well. Thanks to all of you for continued prayers for her healing of the above, as well as continued prayer for the eyesight to return to normal. God bless you all!

With love,
Jessica's Mom

"My grace is sufficient for you, for power is perfected in weakness." 2 Corinthians 12:9

***To post a comment, Click on Comments below***

66 comments:

Anonymous said...

Nancy says:
Hi Jessica and Sarah Gina. What a blessing to have your new friends & extended family, bringing gifts of love & bounty on Thanksgiving Day! You two attract love and wonderful people into your lives.

I'm glad you had a taste of celebration to enjoy with us as we all prayed together for health and happiness! May Jessica's eyes feel the relief and coolness of God's hands while restoring her vision.
Love Nancy

JennKIurz said...

Hi Jessica and Gina

Happy Thanksgiving! I'm sure this is one that you will always remember but I do think that next Thanksgiving it will be even more memorable b/c you will be home and hopefully healthier. Hopefully one year from now Jessica you will be experiencing pure joy and freedom
from the RSD and Lymes Disease.

We prayed for you at our house on Thanksgiving and our prayers will continue each day. May God continue to hold you in his arms and free you from this disease.

I'm happy to hear that you got at least a taste of some pumpkin pie.

With love,
Jenn

Anonymous said...

peace and prayers from Saratoga
Linda

Anonymous said...

peace and prayers from Saratoga
Linda

Madelon said...

Hi Jessica and Gina,
It was a busy Thanksgiving for me with all 4 sons home to celebrate and it was also very special. I am so grateful and thankful that I was able to be with my family. My Mom was here too. I pray that next Thanksgiving, you will have your family around you and making that Thanksgiving feast for all to share.
Gina, I am inspired by the messages that you write and each morning I look forward to the next one. I will continue to pray for you every day and for the doctors to be given guidance to help Jessica.
It's a beautiful sunny Sunday in GC...I hope that the sun is shining in Mexico and brings brightness to your day.
God's blessings on you both.
Madelon

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Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)


As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!


Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.


Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.


Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!