Monday, June 14, 2010

WEDNESDAY IS THE DAY!!!

Hi to All our family, friends, and blog followers:

To view Jessica on Fox TV, Click on Link Below:
http://www.youtube.com/watch?v=PW_vstm0bS8


IMPORTANT NEWS:


It is looking like all is a go for leaving the hospital this Wednesday and transitioning out to an apartment here in Monterrey.

As you can imagine, it has been quite hectic here. Many plans to make and meetings to have in order to make this happen!

There have been so many emotions going on these past weeks, as we reflect back on the first day we arrived here at the Hospital San Jose Tec back in August.

I am composing a special message to everyone and will post it as soon as I can.

Please know that we think of all of you always and can't wait for the day when we ultimately come home.

God is in control - only He has the ultimate plan for Jessica - AND - for us ALL!

Please continue to keep Jessica and our family in your prayers and pray that all goes well with our transition.

Till I post the special message,
and in God's amazing hands always,
Sarah Gina (Mom to 3)*

I am the light for the world! Follow Me, and you won't be walking in the dark. You will have the light that gives life. (John 8:12)

I came so that everyone would have life, and have it in its fullest. (John 10:10)


***To Post A Comment - CLICK on Comments Below***

8 comments:

Anonymous said...

How wonderful you now have a date to transition out of the hospital! This is a HUGE step for your family! One step closer to home!

You must be so excited. We are so happy for you!

We will continue to pray that all will go well and the transition will be smooth and uneventful!

May God continue to bless your lovely family and bring complete healing to your sweet Jessica very soon.

With love & prayers,
The Turners

Fern said...

I will be praying that all goes well. May you feel the nearness of our Lord as you finalize all those little details!

Anonymous said...

Jessica, Sarah Gina, & Katherine,
I am so happy for you! I am sure this is one of the best milestones you have accomplished over the past ten months while in Mexico. And there are only going to be many bigger and better ones to come. You are an amazing young woman, a symbol of strength that many other RSD/CRPS patients look up to for guidance to keep on going. You have never given up, no matter the circumstances. Hope everything goes as planned on Wednesday. Katherine, you hang in there too, kidney stones are awful not to mention your mouth still hurting. Praying for a speedy recovery and easy transition.

Lots of love,
Suzie Hyatt

Anonymous said...

I will pray that God gives Jessica extra strength this Wednesday. Blessings be upon you!!!

Anonymous said...

Praises to our Lord!!
Smooth sailing to you three!

Love Nancy

Anonymous said...

Hey beautiful ladies . . . best of luck to you all over the next few days! Our thoughts, prayers and well wishes are with you! How we look forward to hearing how things went and how you all are transitioning . . . it's going to be an exciting adventure and it is sure to be one giant step to go right along with all the others!

Thinking of you every single day!

The Klatt Family

Jane said...

Jessica & Gina,
You're on the move again, and this move is a milestone! As your journey continues, I'm with you in thought and prayer... wishing and hoping for a smooth transition to the apartment and continued progress for Jessica there. I hope Katherine is feeling better, as well.
Jane

Anonymous said...

Hi Jessica, Gina and Katherine,
I'm praying that everything will go well for you tomorrow. God bless you all. Love ya...Kathy Shohfi


Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)


As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!


Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.


Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.


Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!