Thursday, December 16, 2010

Remembering my brother Charlie........

Hi to all~

Today is the 10th anniversary of the passing of my dear brother, Charlie Gelo @ age 40 after a long battle with Hodgkin's Lymphoma.

I miss him terribly but, the one thing I miss the most about him was his unique and funny sense of humor. Charlie was the type of person that lit up a room and he was the one you would want to have at your party because he always had a funny joke or story to tell.

So, in honor of him I'd like to present to you all his "funny" version of the 12 days of Christmas- the "Italian" `12 days of Christmas.

Sung to the tune of "The Twelve Days of Christmas":

On the first day of Christmas, my Italian Grandma made for me...

a creamy ricotta cheesecake

2nd Day- 2 Meatballs
3rd Day- 3 Calamari
4th Day- 4 Broccoli rabe
5th Day- 5 Rice-a-balls
6th Day- 6 Baccala
7th Day- 7 Fig cookies
8th Day- 8 Artichokes
9th Day- 9 Honey Balls
10th Day- 10 Linguini with Clams
11th Day- 11 Shrimp Scampi
12th Day- 12 Zeppoles


From a loving sister,
Sarah Gina

***To Post A Comment, CLICK on Comments Below***


Rosemary and John said...

Dear Sarah & Jessica,

Just precious, in every way. Charlie passed the "humor baton" on to you and I am sure you have made him very proud. What a sweet tribute. You and Jessica are being watched over by your brother Charlie/Uncle Charlie. He is with you always but in a different way. Always in your heart and always guarding you and your family. God bless our loving and devoted families and God bless Charlie.

Love, Rosemary & John xoxoxo

Anonymous said...

Николай Басков нашел себе новую возлюбленную?! Подробности только у нас

Fern said...

May God continue to care for him until you all meet again. So long as he is in your hearts and on your mind he will never truly be gone! Thanks for the inspiring story/song!

Nancy and Joe said...

Set the table...I'll be there for days 10 and 11 for sure! Yes, you carry on where Charlie paved the way to uplift friends and bring Joy to the World! Can't wait to hear all the stories when Michelle and David arrive and share the most blessed of times with you.
Happy Birthday Jesus!!
Love Nancy and Joe and family

Anonymous said...

Jessy, Sarah, estoy realmente emocionada por las maravillosas Navidades que han pasado, estos días no han sido buenos para mí, creo q hay unos pasos hacia atras; pero leerte y verte tan bien me dan ganas de seguir luchando aunque ya me canso un poco, Gracias por ser como son MARAVILLOSAS, LES MANDO UN ABRAZO Y BESOS MUY FUERTES, FELIZ AÑO NUEVO 2011, que este año que empieza sea lo mejor de lo mejor en tu vida...


Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)

As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!

Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.

Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.

Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!