Jessica's Journey: HAPPY MOTHER'S DAY!

Sunday, May 8, 2011

HAPPY MOTHER'S DAY!

Happy Mother's Day to our Super Mom!
We are very blessed to have the privilege to call you Mom and to have the honor of being called your daughters.
You mean the world to us! We love you!
~J,K&M

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Notes to our amazing Mom:

Mom,

Growing up girls dream of becoming mothers to little girls, you got lucky with three of them! I too dream of being a mother to a little girl (or girls!) and only hope that I can be half of the mother to them as you are to me, Jessica and Michelle. You have set a very high bar for us and I hope that we can carry on your loving, forgiving, excitable, fun and nurturing legacy. You went from being my mommy, to my mom to my best friend. I will always, always, always love you!

Love, Katherine!

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Mommy is not just a word.
Mommy is the one who helps you when you're sick.
She is the one person who knows you so well.
Mommy is always there to comfort you.
Anyone can become a mother.
It takes a special person to become a Mommy.
I love you Mommy, Happy Mother's Day!

Love, Michelle

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Mom,

They say a mother is only as happy as her least happy child...and we all know who 'that child' has been in our family these past few years. I know everyone is always commenting on how much better I am doing, but I am loving every minute of seeing YOU feel free to be happy again and regain your life back too!

Your love comes out, in all the things that you do, in hundreds of ways every day. I hope you know none of it goes unnoticed. Nobody loves me like you. The truth is that you deserve to hear much more than I can say. I love you!

Love, Jessica

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***To Post A Comment, CLICK on Comments Below***

6 comments:

Anonymous said...: Dearest Stevenses (all of you): This is a note to wish you a Happy Family's Day, as well as Happy Mother's Day to you, Gina! The three notes from the girls are so heartfelt and honest, you can see the love come pouring out of them- a love freely given and well deserved! Girls, you along with your dad and family and friends (especially God!) along the way have really kept your Mom going all this time. You are each special in your own way and I know that you are all deep in your Mom's heart. Your Dad is also an amazing Dad who is keeping things going up in NY and doing a great job. God has given each of you to the others, for support and strength and love, and Jessica's miracles are your miracles as well. You are a really special family and my prayers are always with you. Gina, I love you my friend, and you are in my thoughts always. Happy Mother's Day!! I pray that God sends you many blessings and that you have a lovely day today!!! Love always, Angel xoxoxoxo; May 8, 2011 at 2:33 PM
Rosemary and John said...: Dear Friend,

I just now read the tribute to you from your special girls.

I always used to ask my Mother "Mom, what do you want for Mother's Day?" From year to year, her answer never changed. "All I want is your love and respect".

As I grew older and had children of my own, I understood what she meant.

Love and respect are what your 3 girls have given to you (without being asked!) and that is a true testament to what an amazing Mom you are!

Love you!

Rosemary; May 9, 2011 at 6:39 PM
Anonymous said...: When my daughter was growing up I would read to her that story that had this verse:

"I'll love you forever, I'll love you for always, as long as I'm living my baby you'll be."

I don't know why but I can imagine you, Sarah, holding each of you precious daughters saying this verse to them and them feeling that deep love with which you love your girls. That love that comes from Him and is so apparent in your words and actions and which resonates through your whole family.

May His love continue to be displayed in your lives and may it continue to grow beyond measure.

Happy mother's Day!

With love and prayers,
The Turners; May 9, 2011 at 7:30 PM
Anonymous said...: Sara , Jesse, quiero mandarles un abrazo a as dos.
A tí Sara mi pequeño e hunilde reconocimiento por el día de las Madres, tú me enseñaste lo que es el verdadero amor de una madre a una hija.

Abrazos Cariñosos

Maria Rosa

Como estás Jessy, voy a leer tu blog, hace mucho que no pasaba a saaludarte, sorry... ahora lo leo, espero de corazón estes muy muy bien...; May 10, 2011 at 1:09 AM
Anonymous said...: Something to encourage you...

http://www.godvine.com/Meet-Kelsey-the-Beautiful-Miracle-Baby-417.html; May 15, 2011 at 8:10 AM
Kevin Inman said...: To overcome these users can purchase the air conditioner remote control unit. When I first heard the idea of installing an outdoor fireplace I thought it would not work well because of the size of the area (it is kind of small), but my expert friend recommended installing a fire gas pit in a corner to maximize space while making it a comfortable area to hang out. The secret to brewing each cup perfectly is the patented tassimo disc technology. Cooked poultry: 2-3 days.; January 9, 2013 at 12:53 PM

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Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)

As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!

Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.

Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.

Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!

What is RSD?

Imagine what it would be like to endure a burning sensation so intense that the most potent pain relievers are completely ineffective, leaving you with the feeling that your body is actually on fire...

Reflex Sympathetic Dystrophy (RSD) is a painful & debilitating chronic neurological disorder that occurs when the nervous system malfunctions in response to a injury or illness- in Jessica's case- Lyme disease.

RSD is characterized by: Continuous sharp, stabbing & burning pain; Extreme sensitivity to touch; Severe headaches; Painful skin ulcers; Intense muscle spams; Softening of bones; Dystonia; Skin temperature & color changes; Hair/nail growth changes; Muscle atrophy; Vascular & Autonomic dysfunction; Sensitivity to lights & sounds and Paralysis.

This rare condition is a mystery to scientists & often is misdiagnosed. Much more research is needed to find the cause of RSD and ways to treat and prevent it.

Ketamine Coma Study

The Ketamine Coma Study is a clinical trial procedure being conducted in both Germany and Mexico, that is considered for patients with the most severe, intractable cases, who have exhausted all other reasonable treatment options.

During this procedure, patients are put into a ketamine-induced coma-- essentially shutting the body down & giving it time to "reset" the nerves, brain and spinal cord. Patients are supported by a ventilator and monitored in the ICU.

So far, only about 100 patients have taken part in the study. For many, it has been miraculous!
However, like any treatment, there are no guarantees. There are also significant risks, especially in Jessica's fragile condition.

The Ketamine Coma shows great promise as a treatment for severe RSD- the key is going to be more research.

What is Ketamine?

Ketamine is a central nervous system depressant that produces a rapid-acting dissociative effect, blocking signals to the conscious mind from other parts of the brain. It was developed in the 1970s as a medical anesthetic for both humans and animals.

There are currently three kinds of ketamine treatments: The Awake technique (continuous low dosage for 4-5 days), the Outpatient low-dose infusion (4-5 hours a day for two weeks, then gradually-lower doses), and the Coma technique (continuous high dosage for about a week).

The hypothesis is that ketamine blocks the neurons and manipulates NMDA receptors which might reboot aberrant brain activity, the coma shuts down the nervous system, allowing damaged nerves cells to heal and "reboots" the patient's brain, much like a computer.

Ketamine can have some nasty side effects. Especially when emerging from the coma, patients may experience hallucinations, lack of body awareness, visual distortions, confusion, and weakness.

Why Mexico?

There is a popular misconception that medical care in Mexico is of inferior quality. However, this is not (always) the case. In fact, many facilities in Mexico are state of the art, with top notch care.

Because Ketamine is considered a schedule 3 drug in the U.S., only a small amount of ketamine is legally allowed for medical treatment according to federal law. The high doses required for the Ketamine coma are currently only legally available in other countries.

Jessica's doctor, Dr. Anthony Kirkpatrick, is one of only a few specialists involved with this study in the U.S. He has teamed up with Dr. Fernando Cantu and his team in Mexico to perform the Ketamine Coma.