Sunday, August 21, 2011

My 2 Years in Mexico Anniversary!

Yesterday was my 2 year anniversary of coming to Mexico!



On August 20th, 2009, I got on an air ambulance, hooked up to several IV medications, feeding tubes and in horrendous pain to come to Monterrey and undergo the experimental Ketamine Coma treatment… My very last hope for survival.

Yesterday on my 2 year Mexico ‘birthday’- I went OUT for the very first time in 5 years!!!—not to a hospital or doctors office—but for FOOD!!! With my Mom and my Mexican sister Cindel, her brother Alex, and her friends Aleyda, and Cabiria!!!

I had the most amazing time! I still can’t stop smiling! :)

I have been wanting to go out somewhere and see some of Monterrey for such a long time! Before yesterday I had only seen whatever there is to see between going from our apartment to Hospital San Jose… which isn’t much!

Yesterday morning, on my 2 year anniversary here, I really felt it was time to try and go somewhere. My mom said “Where would you want to go?” I told her I didn’t care, as long as I could go with somewhere with Cindel, who has become like a sister to me. A lot of the time, especially with young people, when things start going bad, friends distance themselves from your suffering. But not Cindel. I am blessed to have her as my sister and even more blessed to now get to share happy and fun times with her and her friends!

The next step was to call Dr. Cantu and ask him if it was ok to go out. He wanted to know “Who with? Where to? What about this? What about that?” I felt like I was playing ’20 Questions’ with him! It was kind of like talking to my father! and really, that is what he has become to me... my Mexican father :) I know he could tell this was really important to me. He agreed I could go, but than spoke with mom and gave her an extensive rundown of “the rules.” Basically I was to be treated like bubble girl. At the first sign of over-stimulation we would call it quits and need to come home.

Deal!

So we got ready to go out! After Mom helped me get dressed she wouldn't stop looking at me. I asked her why. She said, "Jess... you look...so... NORMAL!?!" Gee... Thanks Mom! haha. Actually, it's the best compliment I have ever received. :)

We took this picture as a joke for Dr. Cantu-- to tell him this is how we decided to transport me, Mexican style... in the back of a pick-up truck! The bumper sticker says, "I'm Special"... perfect! (By the way...we didn't actually go this way!) haha

My immune system is still very suppressed, so germs are a huge concern. But not to fear!! Aleyda came equipped with lysol, sanitization cloths and ex-germ spray to clean everything I was going to come in contact with—she even cleaned my menu, table, and silverware!! Everyone in the restaurant was staring at us like we were crazy, but that’s ok!

We went to an Italian restaurant called L’Anfora. It’s really pretty with a wooden stove in the center where you can watch while they cook the food. It also has a cave in the basement!

This was my first time ordering off of a menu in over 5 years! I couldn’t decide what to get! I wanted everything!!

I ended up ordering Penne alla Vodka! It was sooo delicious!!! We also got a few appetizers of Calamari, Eggplant, Octopus, Mushrooms in a red pepper sauce. Yummm!

This was a really special day for my mom and I, as it was our first time out together! I just kept looking over at her, watching her smiling at me. To see looks of happiness, joy and amazement replacing the looks of concern, sadness and worry on her face to me is worth more than anything in this world. She's the most amazing person, mother and best friend that I have and I am so happy that I am better and now she is better too!

They told them it was my birthday! The waiters sang the Mexican birthday song called “Las Mananitas” to me!

The song goes like this: Estas son las mañanitas, que cantaba el Rey David/ Hoy por ser día de tu santo, te las cantamos a ti/ Despierta, mi bien, despierta, mira que ya amaneció/ Ya los pajarillos cantan, la luna ya se metió.

Translation: This is the morning song that King David sang/ Because today is your day we're singing it for you/ Wake up, my dear, wake up, look it is already dawn/ The birds are already singing and the moon has set.

It’s funny and ironic that they sang this because I kept saying to everyone yesterday that somebody should pinch me and wake me up… because to be out, having this much fun and feeling this good, it must be a dream… I must still be asleep in the coma!

After dinner I still felt like I had some energy so we went to the nearby frozen yogurt place! It’s called Yummoramma and my mom is always going there to get me yogurt—probably about 3 times a week! They have 12 different flavors and tons of different toppings you can add! I tried every single one! The lady who works there came over to me and told me it was “nice to finally meet their best customer!”

Two years ago I would have rather died than continue to live being so sick and in horrific pain, unable to move my legs, tolerate lights or sounds, eat, or even be touched or hugged.

Today, I LOVE my life! I AM awake! I feel ALIVE again!

I am eternally grateful for the renewal of life that I have received here and I am so excited about the future…a future I was told by so many doctors that I would never have!

Our God is an AWESOME God!

Thank you Mom, Cindel, Aleyda, Cabiria and Alex for making this day so special for me. I love you guys!

In God’s amazing love,

Jessica


Special announcement! I have very big and exciting news to share soon! Plans are being made and as soon as I have more details I will let everyone know! It has been all of your support, love and prayers that have helped me get this far and I can't wait to share the next step of the journey with you all! So, Stay tuned!

*To Post a Comment click on Comments below*

38 comments:

Fern said...

I am so happy that you were able to go out! What a way to celebrate! I was with you in spirit, smiling along.
You are right, our friendship base diminishes greatly, but the ones who remain are treasures!
You look great in the pictures! I am so very happy with you!

Rosemary and John said...

Dear Jessica and Serafina,

CONGRATULATIONS!!! What an amazing story and celebration of your 2 years in Mexico! I have so much I want to say to you, but please just take these few words from me for now. You are an amzing family and your story has inspired so many people, most of whom you will never know or meet. Love you and praying for nothing but continued healing until you are up and walking again and the nightmare of RSD is forever in the past!

Love and xoxox,

Rosemary (and John)

Anonymous said...

Jess, we share in yours and your Mom's joy.

Now when you look back at the base of that moutain that you have climbed up the last two years you must feel so elated and overjoyed.

God did rescue you, just like His word says, just like your parents had believed He would. In God's way, in His time!

Maybe one day you will go back and walk up that mountain. With God all things are possible.

We look forward to your next update (with tissues in hand).

May God continue to bless you and your entire family.

What an amazing journey this has been. We should never underestimate the POWER of God.

I heard someone say we should expect great things from God and I believe this was an awesome display of His glory.

With much love and continued prayers,
The Turners

Michelle said...

Wessie!
Reading this story and seeing all these pictures of you feeling so well it brought tears to my eyes because i remember that summer i came down to see you and mommy and it turned into you going to the hospital and i was scared for my wessie! But now i am not afraid anymore because according to the bible: but those who hope in the LORD will renew their strength.
They will soar on wings like eagles;
   they will run and not grow weary,
   they will walk and not be faint.
Isaiah 40:31 and that is what God has done for you! Rejoice in the day that the LORD has made for you! I love you more than i can explain! You are so strong thankyou for never giving up! I LOVE YOU!! Love your little sesame haha (wessie) , Michelle

Jodi said...

Hi Jessica & The most amazing "Mom" ever,

This is what we have all been praying for,for soooooo long. TEARS of JOY for your VERY special day! The Journey continues & what a ride it has been for you & your family.God works in mysterous ways,He has a plan for you Jessica. I feel sure of that because you are a miracle! I am super excited for how wonderful you are feeling & now able to live life & experience things we all take for granted. I look forward to many more posts were you share yours joys to come.We are there with you all the way girl!!!
Jodi,Naples,fl.
P.S. I met your Sister & Dad recently, they joined us on a sunset cruise.Was great to meet them. Take Care Xox

Anonymous said...

Hi Jessica,

What an amazing story. We are so happy for you.

Love Ashley, Paula, Raymond and Kevin

cindel. said...

Jess, mum and I just read it. You made us both cry! Tears of joy, we're so happy that we can share this with you.
I'm so thankful for getting to know you and for walking down the same path with you. Who would've thought that you would be doing this now? A year ago, and I know that I can speak for everyone, everything was scary and blurry but now TODAY looks bright and whatever tomorrow may bring we'll always have this and each other, we'll always have the good and the bad moments, the laughter, the delicious food, the bad jokes, the "Pijamada" and the deep serious talks... everything that has been part of this great adventure, because that's what it is. But most importantly: the love.
I love you very much, your mexican sister,
Cindel.

Sugei Avitia said...

Hi, Jess
I have been praying for you; you don't know me but I always keep you in my prayers hoping that one day you will see the light. I'm happy and I feel like I was one of your friends by your side enjoying life the way you do and listening to the mananitas song. By the way, I have notice your spanish is very well.
sugei@hotmail.com

Anonymous said...

Hi Jessica and Sarah,
We are absolutely thrilled to read about your wonderful adventure Saturday! You both look so amazing with your happiness just oozing through the pictures. Thank you for sharing this amazing news with us - we'll continue to pray that many, many more re-beginnings lie ahead.
Love,
Kathy, Mark, Kerri and Erin

Elayna said...

Jessica, we love you and have prayed for you and followed your journey. I feel so happy to see you and to read about your new life...God has given you a second chance.

Joanne said...

Praise be to our Lord! I am so very excited and happy for you it is difficult to type through the happy tears! It has been such a long journey for you and your family and your family of friends. You held on through terrific challenges and have emerged as the beautiful young woman you are. I recently met your Dad and Michelle on a sunset cruise - talked to you on Skype. Next time we do the cruise I want you to be with us! Our prayers are answered. God bless you.

Taresa Spiroff said...

What a fantastic update! I am so happy for you and your recovery and am glad i was able to share a small part of your journey. You have such terrific support!
Keep up the great work and recovery
Taresa & Molly Spiroff

Anonymous said...

I can hardly stand the suspense! Looking forward to your next post!

Anonymous said...

On the wings of a dove...God has spread his love, and you are the messenger to the depth of his caring and as we watch you soar we await more....great news you'll be sharing!!
xoxo love Nancy & Joe

Anonymous said...

*CHILLS* that is all I can say!!! totally amazed!!!! hang in there I am sure there are more things in store!!!!!

Anonymous said...

I've been praising the Lord about your healing. This so, so wonderful!

Anonymous said...

Dearest Jess and Dearest Gina, We have been waiting for this day!!!!!!! We have never given up--- behind you all the way, we your prayer warriors have prayed and begged and pleaded and cried to God our Almighty and Merciful Father that a day like this would come!!!! Alleluia, Alleluia!!!!!!! I call out to God our Father in eternal thanksgiving for giving you back your life!!!!!!! You are on the journey back, Jess!!!!! And I and so many others, humbly, have been with you all the way and will never stop praying- prayers of petition and of thanks, in hope and in gratitude. I am so happy for you- tears of joy are spilling down my face for the happiness on your face and that of your amazing mother (GINA!!!!! LOVE YOU!!!!) One day we will see each other again and that will be a GREAT DAY!!!! With God ALL THINGS ARE POSSIBLE!!!!! Love you ALWAYS, Angel xoxoxoxoxoxoxoxoxoxoxoxoxoxoxo

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Anonymous said...

What is it? What is it?

Anonymous said...

Hi Jessica!
We are so glad that you are loving your life and were able to go out and have fun!!!! You are so strong and inspirational not just to us, but to everyone you meet! We keep you in our minds and in our prayers and hope you will be able to come see us in Florida very soon!
Taylor Thompson and Family

Anonymous said...

http://www.desiringgod.org/blog/posts/how-do-we-know-if-we-love-christ#.Tkx6g7ZK6go.facebook

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Finally, if we love a person, we like to be always with him. Thinking and hearing and reading and occasionally talking are all well in their way. But when we really love people we want something more... Well, it is just so between the true Christian and Christ!

Cousin Regina said...

Jessica! I am so thrilled to see you happy and enjoying Mexico! Your pictures are amazing! You are right! "Our God is an AWESOME God!"

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You give and take away
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Anonymous said...

The anticipation is building ...

Anonymous said...

New haircut, dinner out, Katherine is coming for a visit ... Oh what could it be?

Anonymous said...

Wonderful! I'm so happy for you. You have come a long way from the girl I first saw in Sept 2009 in the hospital. God is truly an awesome God and you remind me that it is God's time and will--not mine--that I should be praying for and praising him for. Love to your mother--
Gloria Andress

Anonymous said...

I don't even know you.. but you are so often in my thoughts and prayers.

I certainly don't understand how God works in our lives, how or why! he can use pain and suffering. But I certainly do SEE Him working in you, doing wonders and miracles

Anonymous said...

Hi Jessica, I remember the first day you come to the San Jose´s ICU. Specially the hope, patience and the true love of your mom. The times goes very quickly, and I happy to see you smiling.

Receive my prayers and best wishes

CALK

Anonymous said...

Jessica,congrats on your night out and all the little milestones and victories that have led up to it.

I had no doubt (not even a smidgen)that this day would come in our Lord's perfect timing.

My heart will be oveflowing for some time to come, and I can't wait to share it with all the caregivers and friends I have shared your journey with.

In God's Agape Love to you and your wonderful mama....Your friend in Christ Jesus, Linda Pedigo, Wesst Lafayette, Indiana

Anonymous said...

Soon - when is soon?!?!

Anonymous said...

HOPE

Having
Only
Positive
Expectations

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Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)


As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!


Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.


Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.


Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!