Happy belated Halloween :)
Before I was sick, my family used to go all out for Halloween. We were always the first house on our street to have our decorations up and my mom was notorious for her clever costume ideas she came up with for my sisters and I. I have many good memories!
So, even though it is not widely celebrated here in Mexico, Yesterday I celebrated my first Halloween in over 5 years!
We made a “Haunted” Gingerbread house…
And I carved a pumpkin!!!
My nurse who has become one of my close friends, Angeles, came over and made Halloween cupcakes with me!
It was her first time ever celebrating Halloween!
My crazy mom agreed to dress up with me and we went trick-or-treating (giving out the cupcakes) to the people we have gotten friendly with in our apartment building!
We were a doctor and a patient.
So original, I know…
(Thanks to Dr. Rainbow for letting my mom borrow her doctors coat! …My costume was obviously courtesy of Hospital San Jose. :)
Later last night a few friends came over to see our costumes, take pictures and eat candy with me!!
It was a great day and my most special Halloween yet!
...Which brings me to today. November 1st.
November is RSD Awareness month, and as I continue to make great progress in my recovery and experience all of these new, happy memories in my life I continually find myself thinking about all of the people who are still suffering and fighting with the horrible pain this disorder causes every minute of every single day… Especially those I’ve come to know and love through my journey here.
Last November I posted this blog about RSD along with this video, which I think deserves to be re-posted and re-watched-
Much of what I wrote at this time last year remains the same...
RSD is still a horribly painful, complex, mysterious and very confusing disease. There are still more questions than there are answers for many RSD patients.
We still need more awareness. We still need more research on the causes, prevention and treatment options for RSD… We still desperately need a cure.
However, this year, I write with much more hope and confidence that we are getting closer.
I have seen firsthand how far the wisdom, compassion, knowledge and dedication of the right doctor can go to bring even a patient with one of the worst cases of RSD, like me, back to the level and quality of life that I am now blessed to enjoy.
My hope and my prayer is that there will continue to be more answers, for all of us, who are dealing with this illness and for continued perseverance and understanding for the doctors who I know are working so hard on our behalf to lead us back to better, less-painful lives- especially Dr. Cantu and his team here!
Tomorrow I will be going back into the hospital for treatment to strengthen my bones. This is a new treatment for me (probably one of the only medications in the world that I have never had before!) so please pray that I tolerate the infusions well with no adverse effects so that my time in the hospital will be minimal and I will be strong enough to come home!!
Thank you for continuing to check my progress and keep me in your prayers. I will update again in a day or two from the hospital and be posting more information about RSD during awareness month.
"Now faith is being sure of what we hope for and certain of what we do not see." (Hebrews 11:1)
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