Hi everyone!!
I apologize for not keeping the blog updated more frequently! Life can get so busy... Especially after coming back to life after 6 years of not being able to do anything, I sometimes find it very hard to pace myself and time just gets away from me... I want to go/see/do everything all of the time! ;)
I also recently started taking several classes online through a local university and that has been keeping me pretty occupied. I am loving it, especially my Anatomy/Physiology class :)
However, even with all of the new life excitement, there is never a dull moment around here...
I had a little incident.
The story isn't that interesting or exciting. My electric wheelchair broke and while it was being repaired I was given a loaner chair to use. Long story short, I wasn't used to the speed settings on the new chair... So when I went to go into my house I bumped both of my feet into our sliding glass doors.
Yeah... not my finest moment :(
Anyway... though I didn't hit very hard, it was hard enough to flare up RSD symptoms in my right foot, and pretty quickly.
I began having tremors, increased painful sensations and not being able to control the movement of my foot/ankle. Even though I only banged my toe, the bruises spread to the entire foot.
Within a week the foot looked like this:
I apologize for not keeping the blog updated more frequently! Life can get so busy... Especially after coming back to life after 6 years of not being able to do anything, I sometimes find it very hard to pace myself and time just gets away from me... I want to go/see/do everything all of the time! ;)
I also recently started taking several classes online through a local university and that has been keeping me pretty occupied. I am loving it, especially my Anatomy/Physiology class :)
However, even with all of the new life excitement, there is never a dull moment around here...
I had a little incident.
The story isn't that interesting or exciting. My electric wheelchair broke and while it was being repaired I was given a loaner chair to use. Long story short, I wasn't used to the speed settings on the new chair... So when I went to go into my house I bumped both of my feet into our sliding glass doors.
Yeah... not my finest moment :(
Anyway... though I didn't hit very hard, it was hard enough to flare up RSD symptoms in my right foot, and pretty quickly.
I began having tremors, increased painful sensations and not being able to control the movement of my foot/ankle. Even though I only banged my toe, the bruises spread to the entire foot.
Within a week the foot looked like this:
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That is the really weird thing about this condition... I hit both of my feet equally hard, yet only my right foot developed the symptoms. RSD is a really confusing, bizarre and complicated disease.
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(Right foot with RSD, Left foot perfectly fine)
After talking with Dr. Cantu and sending him some pictures of the foot, we knew it would be necessary to go back to
Thankfully the treatment was very successful! I feel very fortunate that it works for me as well as it does.
The pain is down to a much lower level, the swelling is less, the tremors are gone, the bruises are fading and the movement is slowly coming back! I am sure with continued patience and water therapy, it will return.. And hopefully even better than before :)
Because I name everything, I now affectionately call my foot "Footnando"...after Dr. Cantu (Fernando).
I'm not sure if he really appreciates that or not :).... But I appreciate his compassion and continued efforts to help me get 100% better more than he will ever know!
In other Stevens family news, Katherine also went through a very rough flare with her Crohn's disease this past month and had several visits to the ER for symptom control. She is on new medication and seems to be on an upswing for now... Please pray that it continues!
Also this past week we celebrated Michelle's Sweet 16!! I can't even believe my little 'baby' sister is 16!! And is driving!! And is a Junior in High School!!
It's so surreal, in my mind she is still 10! Even though my life stopped during the years I was so sick, it certainly didn't stand still!
Michelle, I love you beyond what words can ever express. I couldn't have asked God for a more amazing baby sister. I can't imagine my life without you and I am so blessed and happy that I was finally able to celebrate your birthday with you! I am proud and honored to be your big sister.
Well, Thanks for checking in on me and for keeping me and my family in your prayers! It means so much.
If you could please keep our neighbor, Christian, a special little 6 year old boy, in your prayers too. He has a rare neurologic disease, called Metachromatic Leukodystrophy (MLD) that has now taken away most of his physical abilities... but not his sweet spirit!
And also my dear Mexican RSD friend, Estefy, who is still in the hospital and really needs pain relief.
...and for everyone else suffering with horrible pain and diseases and a cure for them all... I personally know of way too many people in need of relief right now.
God bless!
Jessica
PS-I am always saying I wish I could find a way to personally thank everyone who helped make my new life possible, and I think I may have found a way...Stay tuned! :)
"Rejoice in all God is planning for you. Be patient in trouble, and keep on praying." -Romans
24 comments:
Thank you for your updates. Happy birthday Michelle!
We appreciate how you've opened your lives and shared the journey of your recovery that you and your family have taken these past years. Your walk of faith is such a blessing. You are a blessing. We stand in awe of your progress and will pray the foot heals very soon! Keep going!
First, Happy 16th to your sister. So great you were able to celebrate as a family! Secondly, Oh ouch- Poor foot!
So amazing you are taking classes! I hope you still have the goal of being a physician in your heart... But If God should lead you in another direction, I am sure you will prosper in whatever you do.
You and your beautiful family continue to touch my heart and the hearts of so many. Please know that you are in my thoughts and prayers every day. Thank you for showing us what loving life and God is really all about! Hugs to all of you and please slow down and rest that foot!
It is strange what happened woth your foot and to think that RSD / CRPS has been around for such a long time yet they still have no cure. Thanks for such an informative post. May God use this to further educate the medical community and bring forth a cure.
Ouch .... So awesome that God has you on the road to recovery and also Katherine. HBD to Michelle...and Molly too. See you soon! Woof Woof, Mr. Tinker & DD and Nancy & Joe
Hi jessica and family! Sorry to see the setback with the foot, great that you were able to be proactive and head south for Dr. Cantu to work his magic. I think it is wonderful you are living such a full life... Simply amazing progress. God bless you all!
praying for nothing but continued healing until you are up and walking again and the nightmare of RSD is forever in the past!
Hi Jessica,
Man oh man.....what next, eh? Your poor tootsies. It hurts just to look at that foot. We are happy Dr. Cantu was able to give you some relief from the pain and that all in all, you are on the upswing. Going to college? Med school next!
You and your sisters are all so beautiful and we know you treasure that special relationship as much as they treasure their big sister!
We pray your progress and healing continues. May God continue to shine his light upon and inside of you.
Love you always!
Rosemary and John
God Bless you Jessica.
You and your family are amazing and very special.
My prayers are with you all.
Wishing you a quick "foot" recovery...the foot looks very painful, but you look absoulutely wonderful! you are always in our prayers. It's so good to see that you are out and about and enjoying life...Hugs and kisses to you and mom!
Hi Jessica and all the Stevenses! Thinking about you guys! Jess, I'm so happy that you're taking classes! Your brain must be so ready and eager to soak up all that knowledge- you're such a smart young woman and always enjoyed school so much! I pray that Katherine's medication continues to help her. Happy birthday Michelle! Jess, I hope your foot heals completely very soon! Say hi to everyone for me! Love always, Angel xoxoxoxoxo
Jessica, thank you for thinking of all the rest of us RSD patients out here fighting this indescribable pain and as you so aptly put it other "bizarre" reactions. It is so hard to look into the eyes of my family and my courageous pain doctor who have fought so hard for me and yet get worse and worse instead of better. We who know of you are thinking of you and are so proud of you. Thank you again for not forgetting us.
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