Thursday, November 22, 2012

Happy Thanksgiving!!!



"Give thanks to the Lord and proclaim his greatness. Let the whole world know what he has done." 1 Chronicles 16:8

Happy Thanksgiving everyone!!! 


I have begun typing this blog, deleted what I wrote and re-started about a dozen times now... I have so much to be thankful for that writing it all out seems overwhelming, if not impossible.

My gratitude runs so deep for so many reasons! 2012 has been the best year of my life so far! And today I get to celebrate my first Thanksgiving at home with my family in many years!!! I even helped prepare some of the meal with my mom and grandma! I can't wait to eat it all in a few hours!!

I know this Thanksgiving will be one of the most special yet!

As  I am sitting here, I can't stop thinking about my most favorite Turkey Day memory...Thanksgiving 2010.

Just 2 weeks after getting out of the hospital, after a very long 16 months inpatient, I celebrated in our Mexican apartment with my special-hero-angel-doctors, Dr. Cantu, Dr. Luigi,  Dr. Rainbow and their families.

That meal was prepared by my mom with sooo much love, admiration and gratitude for these amazing doctors who had saved my life and become our Mexican family.

To watch the hands of the doctor who saved you, carve the first Turkey you are able to eat in 5 years, was really beyond words and my wildest dreams!

It was all so surreal back then, and even more so now this year as I prepare to sit around our table, in my own home, with my entire family around me!

 I am so thankful for this day!!!

 But my heart is heavy for all of my friends who are not doing so well right now. This time of year it's extra important to keep everyone suffering with chronic illness/pain in your thoughts and prayers. During the years I was sick all the holidays served to do was remind me of how horrible my condition was, and each year the good memories of holidays past seemed further and further away. Holidays exacerbate the hopelessness, loneliness and limitations that an ill person is already dealing with daily. For me, whether it was smelling the food I couldn't eat, hearing the laughter I was not a part of, or being in a hospital away from it all... It was incredibly hard, and sometimes totally impossible to feel thankful about anything.


Except for that One thing.

This year and every year I will always be most thankful to God for being a God who...

Forgives all [my] sins and heals all [my] diseases, 
who redeems [my] life from the pit 
and crowns [me] with love and compassion, 
who satisfies [my] desires with good things 
so that [my] youth is renewed like the eagle's. 
(Ps. 103:3-5)


No matter what circumstance you presently find yourself in, Remember who He is this Thanksgiving!!

The holiday of Thanksgiving is a great reason to get together with family and eat delicious food... But "thanksgiving" also needs to be a daily practice of thanking God for what He has done in the past & trusting Him for what He will do in the future.

Happy Thanksgiving 2012 and Thank YOU to everyone who has loved and supported me and my family through our crazy journey!


Forever grateful,

Jessica


“Gratitude unlocks the fullness of life. It turns what we have into more than enough. It turns denial into acceptance, chaos into order, confusion into clarity,  problems into gifts, failures into success, the unexpected into God's perfect timing. Gratitude makes sense of our past, brings peace for today and creates hope for the future."



****To post a comment click on "comments" below***

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Fern said...

Happy Thanksgiving!

Rosemary and John said...

HI Jessica!

Belated Happy Thanksgiving to you & yours too!

It is so heartwarming to read your messages as you recall where you were and how far you have come. You are always giving thanks to those who helped you along the way and always remembering that God has your back! You are a living angel among us and we rejoice in seeing you beginning to live a "normal" life once again.

Enjoy all you can and know that we keep you close in prayer and thoughts always.

Love and xoxo,

Rosemary and John

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Just read your Thanksgiving message. Happy Thanksgiving and A Joyful and Blessed Christmas.
Ran accross your site lokking for another web site. We have a Jessica who is in a slow but progressing recovery from TBI, and her site is journeyforjessica.com
What caught my attention was Jeremiah 29:11 . It is hanging in her room and we use it daily to remind us who He is and where we are. Thank You

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Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)


As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!


Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.


Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.


Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!