Hi to all,
For those of you who didn't see Jessica's story "Counting On A Coma" on Channel 7 - Fox News Miami, or were having difficulty getting to the link, my husband set up the video in You Tube.
Just CLICK on the following link to see Jessica:
UPDATE ON JESSICA:
I heard thru so many people how impressed everyone was with seeing Jessica's story on T.V. She has certainly touched so many lives by telling the world what it has been like for her these past few years and raising awareness for RSD and Lyme disease and the complications that both illnesses can cause!!! Jessica was able to hear the video link in her hospital room here in Mexico but is still unable to see it without seeing the "static" that has been plaguing her! The tests on her eyes revealed a small alteration with diminished velocity in the myelin sheath in the brain. The neurologist, Dr. Romulo , believes that her vision will be restored eventually, but whether it will be days, or months, is uncertain at this time! Also, the causative agent is unknown. As you can imagine it is very distressing for her to say the least!
Also, Dr. Cantu has decided to go forward with her ketamine boosters and she has received # 3 & 4 in the past few days. These boosters are essential for her recovery and it is their "weapon" of choice here; especially since some of her lesions are returning on her arm, as well as some of her pain.
SPECIAL REMINDER - FUNDRAISER TONIGHT:
Fundraiser for Jessica's Journey tonight at the Garden City Firehouse - 347 Stewart Avenue - Garden City, N.Y. They will be serving light food and refreshments and selling tickets for different types of raffles. It will be held from 6-11 PM. If you cannot attend, donations can be made to: Jessica's Journey Savings Club and sent to: Carol Biron - 14505 Indigo Lakes Circle - Naples, Fl. 34119 and Thank You All for your support!!!
We hope you are all well. Remember that every journey begins with small steps. We continue to follow the course here, to the ultimate goal of getting Jessica's life back! We are humbled by the outpouring of love from our family, friends, and even complete strangers! We also know that without the love of our God, who strengthens us and ultimately heals us, this journey could never have been made!!! May God bless you today and always!
All our love from Mexico,
Sarah & Jessica
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10 comments:
Saw Jessica'sr story on fox. After 22 years with RSD, understand her choice to try the coma and hopefully with time and continued treatment her RSD will be gone or at least well controlled
I had a period of no pain after seizures and being kept in a coma for 5 days in 1993. A different med which we know doesn't stop the pain but I had 3 months without pain. I just want ou to know that even if the pain returns it probably will be different and ho[efully much less In these 22 years I have found that the condition changes and no matter how hard it is we have to try and adapt to the changes. Now Jessica is traveling the ketamine path ad hopefully all of her dreams about it will come true.
Barbara Schaffer
Dearest Jessica and Gina, I just saw the Fox 7 report on YouTube (thank you so much David for putting it up!) and I am touched beyond words. Thank you for sharing your story. There may be people out there who saw it who can now feel that they're not alone in their pain, and others who can put a possible name to what they are going through. Jess, with your determination, honesty, and strength, you are truly an inspiration. Gina, your devotion to Jessica's care and health, and visions of her healing and her future, are what's keeping us all going. You, my friend, are absolutely amazing. We will be at the fundraiser in GC tonight. Hang in there! Praying and thinking about you all the time. Love always, Angel
Your strength is amazing and you are more than an inspiration. I pray that the treatment goes as planned. May God Bless You and Your Family.
Hello Jessica, I pray that God heals you completely. And that you can use this experience to touch others as you are now, but especially after this chapter of your life is in the past.
Press on friend. My family and I are praying for you.
Hi Jessica & Sarah Gina,
Happy to hear the dr said eye site will return,will pray for it to return very soon! Aslo happy to know the K boosters are back into play, I was worried about that & praying you'd be back on track with that,sooo YAHOO!You are both the bravest people & every day I am more amazed by you strength! Shine on beautiful girls!
To your Family & Friends in N.Y. tonight I wish you great success with your fundraiser!We are all pulling for you here in Naples,Fl.
PEACE XOX Jodi
What great news about Jessica's eyes!! So excited for the day you will TYPE....it's BACK!!!
We can feel the energy all the way down her on Marco Island... of the love and prayerful efforts as the FUNdraising begins!! Thank you dear NY friends and have one for us.
Joe & Nancy
Jessica - the Davis Family in Marco Island is pulling and praying for you. We believe in miracles - and we believe you are one.
Hang in there and keep dreamin' big - Olivia's family
Jessica and Gina, saw both of your beautiful faces on TV. So glad you were willing to share your story with the rest of the world. Now everyone can see your amazing strength and persuit of relief for your suffering. Went to the fundraiser tonight. Great turnout. I know you were both there with us. Love, Bonnie
I am one of Devon's many cousins and my Aunt Cathy sent a link to your TV interview. Your blog is great and probably a lot of work for you but helpful for loved ones. I liked reading it and have not met you!
My family loves the emails we get full of details of Devon's recovery.
Hopefully things continue to go well for you and your family. We are all praying for everyone down in Mexico.
Liz Musolf
Hi Jessica, I have been fighting the fight of RSD for ten years now, although mine is not as severe as yours, I know what you are going through.
My Prayers are with you that this Treatment will give you some relief. In your own words "This is no way to Live".
We just need to continue to get MORE people and especially Doctors to recognise that this those exist.
God Bless you and "NEVER GIVE UP"
Felix
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