Thursday, October 29, 2009

Over 18,000 Views of Blog!!!

Hi everyone,


Upcoming Fundraisers in Naples, Fl:

Wed. - Nov. 4th - 4-9 PM
@ Tropical Smoothie Cafe
Pineridge Rd. & Airport Rd.
Naples, Fl.
"Great Food for a Great Cause"
Thur - Nov. 5th - 5PM
@ Uno's
Vanderbilt Beach Rd. & Airport Rd.
Naples, Fl.
"Bling" Happy Hour - Sip & Shop"
Special Drink to be Served:

Call Nancy @ cell-(419)350-9058 for Details

Update on Jessica:
Jessica is continuing to try to work on the "small steps" she needs to take while here in the Hospital San Jose Tec de Monterrey. We continue with the boosters she needs for the RSD pain and also the other rehabilitative steps needed for her journey to a better functioning life. The "little" things that when you are healthy you take for granted. Such as: we are trying to gradually each day raise the head of her bed in small increments so that she can go from a laying down position to eventually a sitting up position - something she has been unable to do for quite some time now. It involves putting cushions to support her head and neck and also her own body trying to be able to not have that "vertigo" feeling you get. It is something that is going to take time and effort and patience - a "re-training" of the brain! Jessica is a fighter, as you all know! With your prayers, her determination, and God's divine help - we will eventually see the light at the end of the tunnel!

ALSO - I would like to send out Special Birthday Wishes today to Chyo! She is Dr. Zavala's (aka Dr. "Rainbow's") special cook and helper. She has been with Dr. Zavala for many, many years and she has been helping her to cook and puree and make such delicious things for Jessica - such as homemade applesauce (from the apples grown here in Saltillo, Mexico); lentils, pureed chicken, and egg custards, to name a few!

**Feliz Cumpleanos Senora Chyo & Muchas Gracias Por Todo Que Tu Haces Para Mi Hija Jessica --- Con Mucho Amor, La madre de Jessica, Sarah Gina**

"For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, I needed clothes and you clothed me, I was sick and you looked after me..." Matthew 25:35

In God's love, always,
Jessica's Mom

***To post a comment, CLICK on Comments Below***


Nanc said...

Hi Sarah Gina & Jessica. it's great to hear the progress going on in Marvelous Monterrey Mexico!

A friend of ours, Jeff Kapp, called when he read Jessica's story on our facebook fan page. He reminded me that he had RSD many years ago and even though we had heard his story back then (5 yrs ago), the term RSD never connected in my brain. Jeff had ketamine and is TERRIFIC today,(not the week long coma one though). Jeff, a dentist, can email you his story but in short he had been beaten and left for dead and never expected to have any kind of life if he did make it. Well I am here to say we walked and ran the streets of Texas with his family. Jeff says it's his MIND that made him well. He never gave up, just like Jessica! He kept his eyes on the PRIZE-that being... "staying alive" at that time. He kept a clear picture in his mind of a healthy body and that is what he ended up with. I'm so glad Jeff called me and reminded me of the power we have in our head!Jessica keep pulling up with your arms like you did when I was there. Pretend you're Devon and are ready to excape to your NEW life! Jeff said he worked his body all day long, strengthening it little baby steps at a time. Surprised EVERYONE!!!

Love and hugs to you and prayers of healing for Baby Mexico and his Momma. What a gift God gave the world in YOUR Dr. Rainbow!!!
XOXO Nancita

Anonymous said...

Ms. Stevens, I was happy to read that Jessica is still receiving the Ketamine boosters and is making some progress! My family knows her story and is praying for her. Crystal Ulmer

Aunt Carol said...

Dear Jessixa Auny Carol is so proud of your progress...Keep fighting .. we all love you so much. thank you Dr. Rainbow for your support and comfort to my niece who truly is a beautiful young lady inside and out,,, Love Aunt Carol

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Jessica's Journey to Getting Her Life Back

By Sarah Gina (Jessica's Mom)

As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!

Jessica’s Story

Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.

Jessica and her sisters, 2 mos. before becoming ill

The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.

She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!

Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.

Jessica's painful skin lesions

Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.

Jessica, age 15, at summer camp

Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!

At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.

Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.

July 2003, Jessica's Lyme disease rash

If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!

During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.

Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.

Jessica getting into the air-ambulance to go see Dr. Kirkpatrick

Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.

During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.

Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.

We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.

Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….

We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.

God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!