"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." ~Jeremiah 29:11~
Saturday, April 3, 2010
Blessed Easter (Felices Pascua)
Blessed Easter To All,
Easter Sunday celebrates the resurrection of Jesus and of our ability to rise with him. Because of his death and resurrection we have eternal life. In death, life is not ended, it's changed. The changes are the fullness that God wanted us to live from the beginning. The wonder of the Holy Week is that out of His death comes life for those who believe. Easter Sunday is the highlight for all Christians. May you all have a blessed Easter and may we all be mindful of the message that God sent to us. May that message of new life rising out of death be as powerful today as it was then!
I Peter 1:3:
"Praise be to the God and Father of our Lord Jesus Christ! In His mercy He has given us new birth into a living HOPE, through the resurrection of Jesus Christ from the dead!"
From our family to all of you, may the blessings you have shown to us, return to you tenfold and may you all have a blessed and joyful Easter!!!
Felices Pascua de Mexico!!!
PLEASE WATCH THIS AMAZING VIDEO: "ONE PAIR OF HANDS":
In God's love, always,
The Stevens Family*
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Jessica's Journey to Getting Her Life Back
By Sarah Gina (Jessica's Mom)
As we begin this journey toward renewed health we would like to express our sincere heartfelt thanks and appreciation to Dr. Anthony Kirkpatrick and all the work he has done and continues to do in order to bring patients like my daughter Jessica back to a more meaningful life and restored from this devastating illness. Also, special thanks to Dr. Fernando Cantu and his team of doctors in Mexico for taking on a difficult case like my daughters, Words cannot express the renewed sense of hope that we have that one day, our Jessica, can regain her life that has been taken away from her – God Bless you all!
Jessica’s Story
Once an A+ student who loved school, was involved in many extracurricular activities, played varsity tennis, lacrosse and gymnastics and enjoyed spending time with her family and friends, our daughter Jessica has spent the last 3 years incapacitated, paralyzed, unable to sit or walk and eat. She spends her days confined to a hospital bed, wearing sunglasses and noise-canceling headphones, due to severe light and sound sensitivity.
The pain she feels is indescribable and all attempted treatments have not even come close to relieving her suffering.
She has seen many doctors, undergone numerous painful tests and procedures, has been prescribed various medications, and has been hospitalized frequently including being intubated and on a ventilator. She is severely debilitated and currently is only 92 pounds. This is certainly no life for a 21 year old young woman!
Jessica is suffering from neurologic Lyme disease and Reflex Sympathetic Dystrophy (RSD), a severely debilitating and painful neuromuscular disorder. She suffers daily with constant sharp, stabbing, tingling and burning pain; throughout her body; severe headaches; paralysis; intense muscle spasms; gastroparesis; seizures; twisting of her limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; excessive sweating; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. The pain is constant and unrelenting, but despite her suffering, her faith in God remains and she still has hope for her future.
Jessica's journey began in 1999, when she was only 11 years old. She became very ill with Mono and was bed bound for 3 months. She subsequently developed RSD (stage 1) of the lower right leg. She received early intervention and returned to playing sports and enjoying her life.
Four years later, in 2003, while away at a sleep-away camp, she developed a rash behind her right knee, coincidentally in the same leg that previously had RSD!
At the time, the camps nurse & doctor told her that it was “duck rash” – a rash from swimming in the lake with duck feces. However, Jessica was able to obtain photos from camp from another camper which shows the classic “bulls-eye” rash from Lyme disease! It wasn’t until much later and only after developing symptoms and becoming very ill, was the diagnosis of Lyme disease and Babesiosis (another tick-borne infection) made.
Most people (and doctors!) have no idea how serious Lyme disease can become and no clue how to properly diagnose it. Unfortunately, if she would have been promptly diagnosed and treated for Lyme disease, the RSD would not have been triggered and she would not be suffering.
If it wasn’t for her doctor, Dr. Liegner, and his expertise with complex cases of Lyme, and his determination to try any means in getting her well, by getting a “team” of doctors on her case, we wouldn’t be here today, still fighting. We owe him a deep sense of gratitude for all he does for Jessica!
During these past three years and with the pain becoming more intense and unbearable she has been seeing Dr. Finkelstein for pain management. He has even made house calls to spare her the pain of coming by ambulance to his office. Jessica has been treated with multiple pain medications, at the highest possible doses, as well as an implanted dilaudid pain pump, which delivers potent medication straight into her spine. Many doctors have told us that with the amount of medications Jessica was taking would be enough to “kill a horse”—yet they had little to no effect on her. If it wasn’t for Dr. Finkelstein trying to alleviate her constant, severe, unrelenting pain, I don’t know how she would have managed. He is very special to us as well.
Recently Jessica was transported by air ambulance to Tampa, Florida to see Dr. Anthony Kirkpatrick, a world renowned RSD expert. Dr. Kirkpatrick told us that Jessica is one of the most debilitated patients he has ever seen.
Upon his testing and because Jessica's condition is so severe, Dr. Kirkpatrick is recommending the only treatment available that can possibly help relieve her suffering, and afford her some semblance of a “normal” life - the Ketamine Coma Procedure - a clinical trial that is being conducted in Monterrey, Mexico.
During this procedure Jessica will be put into a coma , with the hope that her nerves, brain and spinal cord will “reset” -so that her nervous system sends the correct signals to her brain.
Yes, this is a radical, scary treatment, however, for Jessica, "scary" is thinking that she could spend the rest of her life in this condition, unable to walk, eat, or take care of herself. Since all reasonable treatments have failed to help her, we feel we must try everything possible to help Jessica regain her life.
We understand that due to Jessica’s fragile condition, there is a high risk associated with this procedure. We are also aware that other patients with severe RSD like Jessica's have had success.
Jessica’s goal is to one day become a doctor. Our hope is that with this study she can have that chance. As her Mom, I know that she will be a great doctor because when a patient presents in her office and says “Doctor, I am in pain and words cannot express how bad it is” – my daughter –Dr. Jessica– will be able to say - :I know how you feel, I’ve been there too. So, take a seat and let me tell you a story”….
We are so thankful and feel so blessed to have been led to Dr. Kirkpatrick.
God is good and with his help guiding Dr. Cantu and Dr. Kirkpatrick, our hope is for Jessica to be able to return to us whole again and pain-free!
114 comments:
A blessed Easter to the Stevens family. Both those in Mexico and those in Florida. He is risen! God bless each and every one of you.
With love,
Linda Wardley
HAPPY EASTER!W
We are so blessed here in Saratoga.
Tonight I have my grand daughter Julia 3 1/2 and her baby brother Cooper 2 months old while their mom and dad celebrate their 6th Anniversary. Thank you Lord for all these blessings.
May the Stevens family have peace and health at the Easter 2010
PEACE AND LOVE TO ALL
Linda in Saratoga
Enjoy!
"He's Alive" - Don Francisco
http://www.youtube.com/watch?v=VbSnk1R31vg
hey my little chickies, Happy Easter from my heart to yours. Jessica, keep up the good work of getting better and Gina, keep up being YOU. You are very special and both of you are in my prayers. Love, Bonnie
Happy Easter Jessica and Mrs. Stevens!
Christ is Risen!!!
(He is risen indeed!!!)
One of my favorite Easter songs this year is Jesus Paid It All) by Kristian Stanfill. It is a modern version of an older song. As part of the end of the song says:
Praise the One who who paid my debit, who raised me up from the dead!!!!!!!
Praying for you all!
In His great love,
Lindsay Spengler
What a glorious day that was and what a glorious day it will be when He comes again!
How amazing must that have been to see the risen Christ! They actually saw Him and talked to Him just as you see and talk to one another. One day!
May God continue to richly bless you and your family.
With love & prayers,
The Turners
Isn't it neat that PEACE is found in the simplicity of believing.
One pair of hands is so calming! Thanks for sharing it! I saw Jessica's hand in the part where it says..."He healed the sick".
Christ is Risen...He is risen indeed!!
Love from Nancy & Joe and the family
Happy Easter Monday! Here in Canada we continue with the holiday and have today off from work. Most people just enjoy the day, but we hope to continue to feel the lavish love of our Risen Lord in the glow of Easter Sunday. My prayer is that you will continue to feel the power of the Risen Lord in this day and in the weeks to come as you cling to Him, our Faithful and Powerful Savior and Lord.
May this week bring you Joy.
I will miss seeing you this week as Fern comes with Cindy instead of me! I will be reading the blogs and be praying for all of you in this week.
May God bless Jessica with more times of sitting up, sitting on the couch, relief from any infections or sores on her face, and effective treatments.
May God bless you, Sarah, with continued strength, patience, love and peace.
And may God bless your husband and 2 other daughters with an enduring heart and mind for this journey they are on as well.
Blessings on this day and this week.
Kathy
One pair of hands is unbelievable! It is so on target. Jessica and Gina, I know that those hands are holding both of you. God bless, Bonnie
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